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Your Reply: See Forum Rules (above) for more information about what codes you are allowed to use in your posts.	[QUOTE][i]Originally posted by Emdad [/i] [B]Welcome to the forum! By your message, you already have a lot in common with all of us. I have found this to be a great place to share both your questions, as well as those things that you may not think that anyone else understands - we probably do. In terms of doing all that you can, my unsolicited advice is that you have to find that level for yourself, based upon who you are and what resources are available to you. Here in California, the educational resources are state-funded and, so far, seem pretty good. We are supplementing this with some physical therapy from our HMO, and will probably do whatever we can as Emma gets older in terms of additional education and/or therapy(she's 14 mos.). Remember,also, that it will depend on Jack, as well, in how hard HE tries. Emma is already showing signs of stubbornness; we are doing our best to turn it into persistence in accomplishing tasks. It is unfair. It is also a chance for your heart and soul to stretch to accomplish things you never thought yourself capable of. Hug Jack for me. There are people around the world who will love him simply for who he is. That is also a precious gift. We have been approached twice this week in stores by ladies who have asked to hold and hug Emma, then explaining that they have grandkids or good friends' kids with DS, and that they just can't resist wanting to hold them and see them smile. I, obviously, tend to go on, too. I hope that this forum can benefit you, should you choose to remain. Jeff G. [/B][/QUOTE]
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Topic Review (Newest First)
Tom	Congratulations Andrea and welcome to our little piece of the web. I think you will find this is a wonderful community of parents with a lot to share.
MM in Canada	Welcome to you, Andrea and congratulations on your sweet little baby boy, Jack. I am so glad that Jack is now healthy and well. That in itself is sure something to be thankful for, isn't it? I'm sure that, like the rest of us, you will find this a wonderful site. I, too, am not from the US. However, most of what we discuss here is applicable across all borders: political or geographic! In fact, the diversity is what makes it even better. I think it's hard not to feel like you could or should be doing more. We all want the very best for all of our children, and with our children with DS there is SO much to know and keep track of. If you are working with a physiotherapist, you are certainly covering the important stuff for now. Probably the biggest other tip is one I heard from another member on this site, LisaJ, who has worked very closely with a Speech Therapist. In a nutshell, this therapist strongly encourages nursing, if at all possible, and the use of very specific bottles/nipples if bottle-feeding at this age. If you are interested in knowing more, check out the site LisaJ referred me to: http://www.oromotorsp.com/art-downsmyths.shtml. Well, once again, welcome to our community. There are many helpful, experienced parents here who have a great deal to share with you. Keep on enjoying your little bundle of joy!
Emdad	Welcome to the forum! By your message, you already have a lot in common with all of us. I have found this to be a great place to share both your questions, as well as those things that you may not think that anyone else understands - we probably do. In terms of doing all that you can, my unsolicited advice is that you have to find that level for yourself, based upon who you are and what resources are available to you. Here in California, the educational resources are state-funded and, so far, seem pretty good. We are supplementing this with some physical therapy from our HMO, and will probably do whatever we can as Emma gets older in terms of additional education and/or therapy(she's 14 mos.). Remember,also, that it will depend on Jack, as well, in how hard HE tries. Emma is already showing signs of stubbornness; we are doing our best to turn it into persistence in accomplishing tasks. It is unfair. It is also a chance for your heart and soul to stretch to accomplish things you never thought yourself capable of. Hug Jack for me. There are people around the world who will love him simply for who he is. That is also a precious gift. We have been approached twice this week in stores by ladies who have asked to hold and hug Emma, then explaining that they have grandkids or good friends' kids with DS, and that they just can't resist wanting to hold them and see them smile. I, obviously, tend to go on, too. I hope that this forum can benefit you, should you choose to remain. Jeff G.
Andrea	Hi, my name is Andrea (Andy) and I am writing to you from Downunder. My baby - Jack - was born three months ago by emergency caeserean due to decreased foetal movement. He was immediately whisked away to the Neonatal Intensive Care Unit due to the fact that he had a hole in his heart and related breathing problems. While still numb from a spinal tap, my bed was wheeled into the NICU where I was told Jack had down syndrome. Suddenly I was numb all over. I didn't get to hold him until three days after he was born. Jack came home two weeks later. The hole in his heart is only small and hopefully will close over by itself. He is now a healthy and happy baby. I think that I have accepted the fact that Jack has Down Syndrome although I still do cry every other day about the unfairness of it all. At first I thought I was upset about the DS because I hadn't had a chance to get to know Jack. Now that I know and love Jack I find it is just as difficult as I only want the best for him. Anyway, I am now thirsting for information and was surfing the web when I found this site. I was just looking at Australian sites but thought I might be able to tap into some other treatments being used around the globe. For example, I have found a site called Brainnet and have ordered a book, "Rescuing Brain Injured Children" by Keith Pennock. Has anyone looked into the treatment that he offers? I am currently seeing a Physiotherapist and understand that this is all I can be doing at this stage. I have anxiety attacks from time to time that I am not doing enough and would like to know if anyone was doing anything more at this stage. I feel like I could go on and on and will undoubtedly frequent this site a lot. I hope to meet some of you by return e-mails. Since Jack was born I have already found I have met a lot of kind and generous people. See Ya Andy

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