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| Main > Introductions > THE PINTO IS HOME. |
| Topic Review (Newest First) | |
| Phyllis | jefry,
we have been praying for your family for some time but have not talked to you. I am so pleased to to hear that joey is home with your loving hands on him. God is good! frank my husband has a song he plays to tell me how he is felling and i thought you might like to also! He's My Son (is the name) I'm down on my knees again tonight I'm hoping this prayer will turnout right See there is a boy that needs your help I've done all that I can do myself His mother is tired I'm sure you can understand Each night as he sleeps She goes in to hold his hand And she tries, not to cry As the tears, fills her eyes (Chorus) Can you hear me? Am I getting through tonight? Can you see him? Can you make him feel all right? If you can hear me Let me take his place somehow See, he's not just anyone He's my son Sometines late at night I watch him sleep I dream of the boy he'd like to be I try to be strong and see him through But God who he needs right now is You Let him grow old Live life without this fear What would I be Living without him here He's so tired, and he's scared Let him know, that You're there (Chorus) repeat Can you hear me? Can you see him? Please don't leave him He's my son. sung by Mark Schultz jefry if you have not heard this song, please do! this song is a man's doubts and fears but you know God is allways there! but when we are weak he is strong. we'll keep joey in our prayers |
| David & Judy Brown | HI JEFRY,
THATS GREAT NEWS,IM SURE YOUR GLAD THAT JOEY IS HOME.THATS A BIG BURDEN OFF YOUR SHOULDERS FOR NOW.WHAT TYPE OF HEART SURGERY IS JOEY NEEDING? VANESSA HAS TO HAVE HEART SURGERY WHEN SHE HITS THE 10LBS MARK BUT RIGHT NOW SHES AT 6LBS 14OZ.SO SHE HAS AWAY TO GO.SHE HAS BOTH VSD AND ASD SHE WILL HAVE HER SURGERY IN LOUISVILLE KY.I REALLY LIKED YOUR POEM. WILL STOP FOR NOW AND HUG AND CUDDLE JOEY AS I KNOW YOU ARE AND KEEP US POSTED ON HOW HE IS DOING. DAVID |
| broadzilla | Jefry,
So happy to hear the good news on Joey!!! I havent' been around in a while and I am glad to see you are still posting. I have thought of you in the months I have been away and see you have come a long way! Keep up the great parenting and hug that little guy for me! Lisa |
| Tom | That is great, Jeff!
By the way, we love that poem, too. In fact we love it so much that we have it on our site: http://www.downsyn.com/heavenschild.html  |
| Cindy | Jef and Shannon, So wonderful to hear the news regarding Joey! The doctors at Riley Hospital are really great! (When you need them! ha)
It sounds like things are going better for you. It won't be an easy ride.....but it's worth it in the long run!! Joey will bring many blessings to your lives. So many, that right now, you can't even comprehend! Best of luck to all of you! Keep us posted ! Cindy |
| vonda | Just wanted to share with you the poem that I wrote for my son Noah. I posted it once before, but don't know if you ever saw it. Here it is:
Down Syndrome: To Noah with Love I pushed my little baby out, they handed him to me. I looked into his tiny face, he was as perfect as could be. Then the doctor said "Down syndrome", and my joy turned into fear. How could he have Down syndrome, for he was so sweet and dear. His perfect hands, his tiny feet and chubby little toes. His jet black hair, his dark brown eyes, and little button nose. They have to be mistaken. The diagnosis just can't be. Then they handed me the test results, and it was plain to see. My baby has Down syndrome. Those words cut like a knife. My baby has Down syndrome, and he will for all his life. I cannot make it better. It will not go away. But I can continue to love him, with every passing day. For God gave me a child with Down syndrome, as it was in the plan He had. And as time goes by I realize, Down syndrome isn't bad. My son has filled my heart with love, and brought me so much joy. He is my little angel........my perfect little boy!!! Love Mommy (Vonda) |
| Ruth Murphy | Dear Jef,
My, how you've blessed my day! I love your baby's nickname "Pinto." It makes me smile. So glad to hear that Joey is doing better and that YOU are doing better. One day at a time..... All my best, Ruth |
| brenda | It must be wonderful to have him back @ home. I believed he must be doing well now. Guess he must be asleep when I post this. Sweet dreams to all of you and Jef, you are wonderful.
Happy Chinese Lunar New Year. |
| Drea | Jef and Shannon,
God bless youand your little "Pinto". Jef, you have been in our prayers from your first posting. I am thrilled to see God is truly moving in your heart. I know Joey feels and sees this! Our Nathanael taught me more about miracles and the true power of prayer(that came when i realized I was not incontrol, powerless in this situation) than anyone or anything in the last 39 years of my life! Hang in there! You are in our prayers! Enjoy the miracle! |
| Louise | Hi Jef. So glad I decided to log on EARLY in the day. Now I have the WHOLE rest of the day to enjoy my happiness, (and relief), that Joey was able to come home!!!!!
About your feeling like all the dreams you once had for your child were severely uprooted... Like a plant, one may go into shock for a time, but I have to believe that God has every intention of replacing those shattered dreams with much better, higher, and more SATISFYING ones for you. All in His timing, like everything else... So until then, keep on keeping on, brother. I'm grateful we all have each other to "be there" for us during the dark hours. Then we all get to see the amazing fruit that follows, together! Obviously, you, Shannon and Joey are becoming quite a bountiful tree. Kiss that baby for me... Love, Louise |
| Emdad | That is really good news. |
| Kelly | So glad you have your little one home again. I just wanted to say that you've all said it so well for me! So true that it's not always easy, but is somehow easier as you get to know your child, see that personality shine thru, feel them respond to you as their parent, not just someone who's "there". About relationships, exactly, if you can get thru this time together, you are stronger. Maybe we know we have to be, for the sake of our kids, and for ourselves too. Thanks for posting, Jef. |
| Vicky | My heart did a back-flip when I read the subject of you post. So glad that Joey is home. I know now that no matter how sad I get sometimes because of Emma's DS, I would be sad beyond measure without her and her smiling, laughing, clapping, blowing kisses, waving, snuggling, just being sweet Emma. However, I must admit that the best way for me to avoid the saddnes is to concentrate on the present and not think too much about the furture (that is still too unknown and scarry to me). |
| Ingrid | Hi Jef,
So glad to hear that Joey came home and is doing better. I guess the 'old man usptairs' was listening to all of us. Even though Erik turned 8 last week, I do still have bad days now and then and I DO remember how awful it was in the beginning. ( I always go back there around his birthday.) I remember feeling so alone and I would often panic just thinking about the future. When that feeling creeps up now and then I remind myself to take things one day at a time, cause that it truly the only way to get through this. If I start worrying too much about what will be I get very depressed and feel that panic all over again. I am glad you have come around a bit and glad to hear that it is bringing you and Shannon closer. I know exactly what you mean when you said what you were afraid of. It put a tremendous strain on my marriage at the time, but somehow it brought us closer too and we somehow survived. Now I cannot imagine life without Erik. He DOES bring so much joy into our lives. He can be SO cute sometimes, especially now that he is talking more. He sometimes has us truly 'cracking up'. I know what you are saying about dreams. I, too, had dreams before he was born and it is true, you have to go through that mourning period, because the child you had expected never came and it is almost like that child died. Instead you were given a very different child from the one you expected and that takes a while to deal with. The loss of that dream is something very significant and the pain of that will never ever go completely away but it will lessen with time and as Joey grows up to be the boy and man he will be, each day will get easier and you will fall more and more in love with him. It will be easier to look past the DS and love him for who he is. I still have dreams for Erik, they have just changed a bit. I LOVE the poem and I had seen it before. Glad you found it. I will continue to keep you all in my prayers. Please keep in touch and keep us posted. My love to Shannon. Sorry I rambled on so long. |
| Marg | Jef,
So glad to hear that Joey is home. Thanks for keeping us up to date. Time will go so fast. Todd turned 4 this week and it is hard to remember those first few months. His surgery seems so long ago. Marg |
| ISO | It is so wonderful that Joey is home now. Joey has a blessed life and he will be fine. (He is blessed by so many people out there, beside God). I'm so happy for you.
Miracles sometimes occur, but one has to work terribly hard for them. |
| Momtofour | Jef,
Glad to hear Joey is home. We will keep him in our thoughts and prayers. I know what you mean about bringing you closer together. Matteo has added so much to this family,it's hard to explain. There does seem to be a tighter bond among us. Like you our dreams for our son have changed from what we had imagened before we knew he had DS. The funny thing is I don't think they have changed that much. Well, again I am glad Joey is home with his family and I hope all continues to go smoothly. Elizabeth Mom to Chiara, Lorenzo, Nicole and Matteo(DS) |
| Judi | Jefry: Glad to hear Joey is home and doing better. You've all been in my thoughts and prayers!
We all have our good and bad days. You'll see (if you haven't already) that the "good" will start to outnumber the "bad". I won't deny that after 4 years w/my dumplin's that I don't have a "bad" day occasionally, but truly they are far and few between. BTW, it really warmed my heart to see a "smiley" next to your post. So much nicer to see that next to your name than a "frown"! Hugs to you, Joey and Shannon- |
| Jefry Klein | To all you special people (and I know there are quite a few of you out there), I want to personally thank you for all your prayers. After 3 weeks in the Intensive Care Unit at Riley's Children's Hospital, Joey got to finally come back home. His breathing is still irratic, but his lung is no longer collasped and his oxidation level is back to around normal. He still pants quite rapidly, but not near as much as when we brought him in. He is up to 9lbs 4oz. They want to wait till he is about 14 - 15lbs (or March) before they do the major heart surgery. I will tell you one thing, Shannon was right (but then again I've never known her to be wrong). This is definetly bringing us closer. Not that we were ever drifting, it's just that I thought this would put so much pressure on our marriage that, well.... you know.
Unfortunatly, I still have those "bad days". Sometimes I sit and think about what is happening. I feel that God has taken away all my dreams that I have for my child. I know that you're thinking that "I will now have different dreams", but you can't tell me that when each of you found out that you (or your wife) were pregnant, that you didn't start to fantasize the life that you would provide for your child. I guess that's the hardest part for me. You know, being a guy, and having a son. I guess it's the testosdorone (I don't think I spelt that right) thing. Well, I've taken up enough of your time. I do want to leave you with a poem I found, but I'm sure you have all seen this before. HEAVEN'S VERY SPECIAL CHILD A MEETING WAS HELD QUITE FAR FROM EARTH "IT'S TIME AGAIN FOR ANOTHER BIRTH" SAID THE ANGELS TO THE LORD ABOVE, "THIS SPECIAL CHILD WILL NEED MUCH LOVE" HIS PROGRESS MAY SEEM VERY SLOW, ACCOMPLISHMENTS HE MAY NOT SHOW. AND HE'LL REQUIRE EXTRA CARE FROM THE FOLKS HE MEETS WAY DOWN THERE. HE MAY NOT RUN OR LAUGH OR PLAY; HIS THOUGHTS MAY SEEM QUITE FAR AWAY, IN MANY WAYS HE WON'T ADAPT AND HE'LL BE KNOWN AS HANDICAPPED. SO LET'S BE CAREFUL WHERE HE'S SENT. WE WANT HIS LIFE TO BE CONTENT. PLEASE, LORD, FIND THE PARENTS WHO WILL DO A SPECIAL JOB FOR YOU. THEY WILL NOT REALIZE RIGHT AWAY THE LEADING ROLE THEY'RE ASKED TO PLAY, BUT WITH THIS CHILD, SENT FROM ABOVE, COMES STRONGER FAITH AND RICHER LOVE. AND SOON THEY'LL KNOW THE PRIVILEGE GIVEN IN CARING FOR THIS GIFT FROM HEAVEN. THEIR PRECIOUS CHARGE, SO MEEK AND MILD IS HEAVEN'S VERY SPECIAL CHILD Talk to you soon, Jef |
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