http://www.downsyn.com/forum/forumdisplay.php?forumid=12 RSS Forum Feed en-us DownSyn RSS Copyright 2006 Thomas and Michel Paul. All Rights Reserved. http://www.downsyn.com/forum/showthread.php?threadid=2022 jessye http://www.downsyn.com/forum/showthread.php?threadid=1911 jessye http://www.downsyn.com/forum/showthread.php?threadid=86 bartons15 http://www.downsyn.com/forum/showthread.php?threadid=100 Dorothy
You are dealing with real faith shaking things. I really understand what you were saying.

Sometimes when God answers, the answer is simply NO.

We do have the promise that whatsoever we ask in his name that he will do it. I think about life as one big book and each day of our life is a page. God has already read the back of the book and he knows what the outcome to your prayer may be. There is a perfect will and a permissable will. Arent you so glad to know that you are in Gods perfect will! Dont be discouraged and dont let your heart get bitter. It may be a while from now you will sit holding your beautiful baby and it will hit you just how perfectly God answered your prayer.

Love and Prayers
Radonna
[/B][/QUOTE] Hello, My name is Dorothy Stone. I just found out my 5 month old son has extensive hearing loss. I would enjoy e-mailing with you,you seem like a very good christian,and I could use the encouragement. my e-mail is lil_sweety39@hotmail.com God bless, Dorothy Stone]]> http://www.downsyn.com/forum/showthread.php?threadid=78 Margaret Milcoff    Our SPECIAL ANGEL Amber "my grandaughter" has hearing aids we have tried to find others that have hearing promblems like Ambers but have not found any till you.Amber is 20 months old and had heart surgery at 6 months.She has had her aids since about 7 months and still wont keep them in.My daughter Vickie, her mother orderd arm restaints but she still works her way up to them.If you send me your e-mail Vickie can write to you and give you more info.How old is your baby?My e-mail:   ambibambi10@home.com   We call Amber ambibambi sometimes.She is so sweet and very active she is such a blessing to us.Please e-mail Vickie she will be so happy to hear from you.She had posted about hearing aids but got no response as of yet. Thank you Margaret  ]]> http://www.downsyn.com/forum/showthread.php?threadid=68 wendy http://www.downsyn.com/forum/showthread.php?threadid=70 Solveig Heres a tip; read the "welcome to Holland" poem in this site. And as for my husband and I as far as dealing with other babies and all of that; you learn as you go. Sometimes its hard, sometimes its not. To tell you the truth, we adjust ourselves to Benedikte so fast its scary. A friend of mine had a "normal" daughter just 2 weeks after Bendikte was born. As you might know, DS kids grow slower than other kids. They are smaller and shorter. When I went to see my friend the other week, and saw her daughter, I actually thought to myself: "That baby is so big its disgusting!!" HA HA. The fact is that I had become so used to Benediktes size, everything bigger seemed freaky! Try to see the humour in it, we did. My friend laughed for half an hour. So, I guess we use a little humour to get by. And we cry when its hard. Everything goes. Theres no right or wrong way to go by this. You learn as you go.
Love, Solveig]]> http://www.downsyn.com/forum/showthread.php?threadid=67 Connie http://www.downsyn.com/forum/showthread.php?threadid=76 Karen First of all congratulations on the birth of your daughter.  Im so glad all is going well medically.  My name is Karen and my daughter, Alexis, was born March 11 with DS.  As you, we did not know about it until they handed her to me and I knew immediately.  We also grieved and are still grieving for the child we didnt have, but Alexis smiles, coos, rolls over and today propped herself up on elbows and stayed there for quite some time.  We too were spared any medical complications and are thankful for that.  You have found a wonderful site here.  Everyone is so supportive and understanding and willing to help in any way possible.  Keep on posting or e-mail me personally if youd like.  Wed all like to keep up on the progress your sweet angel!]]> http://www.downsyn.com/forum/showthread.php?threadid=72 Jefry Klein