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Topic: help   
03-16-2006 06:31 AM
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rachel  
Senior Member

Location:
Registered: Feb 2003
Posts: 107
Last visit: 03-19-2006

Question

My name is Rachel and IĄŻm from Guangzhou China.
A few months ago, a nine-month-old boy was sent to Guangzhou from a remote hamlet. He has complicated heart defect and anus atresia but his family can not afford the surgery expenses. So some volunteers donated on the internet and got enough money to save the baby. When this family came to Guangzhou the baby was found that he was DS before the surgery. After that an argument began about whether or not this baby should be saved. Some said Yes, some said No, some suggested the donation should be given to the normal children, etc. Finally the boy was saved but the argument didnĄŻt stop. As the mother of a DS child, I was very angry at peopleĄŻs ignorance and their so-called rational choice. On the other hand I felt very sorry about the social medical care system.. Last year I built a DS website for Chinese DS family and now there are more than 300 members. This year my objective is to found a fund for the DS kids which have heart diseases. But IĄŻm lack of the relevant knowledge and experiences so I hope to get some references from any one of you. Could someone help me? Thank you very much!.

__________________
Rachel,Mommy to Kin(07/2001,DS),from China, Kin's album:http://f2.pg.photos.yahoo.com/racheldu1978

03-16-2006 08:35 AM
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Jenna  
Senior Member

Location: Texas
Registered: Feb 2006
Posts: 587
Last visit: 03-24-2006

Hello Rachel!!!

I don't have advice for you on the heart fund, but I wanted to welcome you back.

I was heart broken reading about that little boy and all the arguing over his precious life. I'm glad you are taking an active role in your country and hope that all your efforts pay off and reveal to others how very special and indispensable our little angels are.

You're doing a great job, good luck with your goals. I wish you all the best.
__________________

~Jenna
Proud mamma to these beauts!!!




DOB: Nate 7-26-03 ~&~ Lana 4-21-05

****


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  "Just when you think you have learned what you need to know in life,
someone truly special comes into it and shows just how much more there is."

03-16-2006 09:51 PM
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kellyrimmer  
Senior Member

Location: Atwood, TN
Registered: Feb 2006
Posts: 184
Last visit: 03-23-2006

Alexis had heart surgery at 3 mths old and that story was so sad but the good thing he is doing better and had had surgery. People can be so dumb. I hate to read about things like this because it makes you really think about how uneducated people really are and you also think what can I do to change it. I agree with you we need to educate those who dont have any idea. If I can help just let me know.
Kelly

03-17-2006 05:15 AM
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Tigger  
Senior Member

Location: NSW, Australia
Registered: Jan 2006
Posts: 111
Last visit: 03-24-2006

I would love to help but I have no idea what to do. Maybe you could talk to the people that organised the heart surgery and get some ideas from them.

If you find out anything we could do I am sure that heaps of people here at Downsyn would help.
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03-17-2006 12:09 PM
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marci  
Super Member

Location: lancaster, Pa
Registered: Dec 2004
Posts: 1228
Last visit: 03-24-2006

I know that Dr, Myrers and his team travel to different countries to do open heart surgery on kids. He did Joni's open heart surgery. He is a great man. He is at Hershey Medical center. It is part of the Penn State health system in Pa, USA. I don't ever look for them on the web so I have no idea what the web address is but if you have trouble finding them pm me and I'll get their contact information and see if there they can help.
Your doing a great thing. Keep up the good work
__________________
Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

03-18-2006 02:55 AM
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rachel  
Senior Member

Location:
Registered: Feb 2003
Posts: 107
Last visit: 03-19-2006

I really thank your replies and encouragement although I have not got the information I wanted to know. Your supports give me strength to keep up my work.
__________________
Rachel,Mommy to Kin(07/2001,DS),from China, Kin's album:http://f2.pg.photos.yahoo.com/racheldu1978

03-19-2006 05:16 AM
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rachel  
Senior Member

Location:
Registered: Feb 2003
Posts: 107
Last visit: 03-19-2006

Dear Marci:
Could you give me the contact information of Dr,Myrers or the Hershey Medical Center.I cannot find them on the web.
Thanks a lot.

Rachel ^_^

__________________
Rachel,Mommy to Kin(07/2001,DS),from China, Kin's album:http://f2.pg.photos.yahoo.com/racheldu1978

03-19-2006 08:21 AM
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marci  
Super Member

Location: lancaster, Pa
Registered: Dec 2004
Posts: 1228
Last visit: 03-24-2006

I'll keep looking but here are a few places for you to start
http://www.varietychildrenslifeline.org This is the organization that Dr. Myers worked out of
http://www.hmc.psu.edu/childrens
This is contact information to Hershey Penn State. It have addresses and phone numbers.
http//live.psu.edu
This is a live site that brings children to this country for surgery. Click contact that should give the information.

I'll keep looking to see what I can find
Here is Dr Myers phone number.

Dr. Myers
1-717-531-8674
Let me know how it works out.
Good luck



__________________
Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

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