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Topic: Postpartum Checkup...

03-16-2006 12:19 AM

ElijahsMom   Senior Member Location: Waverly, Ohio Registered: Nov 2005 Posts: 135 Last visit: 03-23-2006

Well I went for my checkup today...everything is great...and I'm just wondering something now. My OB is the one who done all of my testing and stuff (except for the amnio) and he was never really pleased with the "care" I was given at OSU. Well, Jon went with me and we had Elijah with us. Dr Parks walked in and I swear these were his exact words: "THATS THE BABY THAT THEY HAD YOU SO WORRIED ABOUT??! OH MY GOD HE IS PRECIOUS!" I didn't know what to say...I just looked at him and was like..."yeah..." He said, "I really think that I would have him tested or have his results checked into because I don't see it. I don't know for sure, but he doesn't look like he has DS to me. The report I have from them is not reassuring either." Now mind you, he is one of the most caring drs you could ever hope to meet and was not in the least bit offending. Just caring. He said that he knows that it doesn't matter but just for reassurance he would have him tested. I'm not sure that I want to. It doesn't matter to us. We love Elijah no matter what and no results would ever change that. They couldn't get me to abort, and they can't get me to worry now. Should I? Has anyone else had drs wonder after giving birth if you knew prenatally? Anyways, the checkup was good...but it was funny cause he asked what we thought of birth control...I just had to say that if we had birth control...we wouldn't have had this miracle...but give it to us now! Jon just laughed---oh, and he is much happier now for some reason. Thanks for listening...sorry it's so long. __________________ Elisha: Mommy to Elijah 2/1/06 [IMG]

03-16-2006 01:06 AM

Tmjones   Senior Member Location: Coeur D'Alene,Idaho Registered: Jun 2005 Posts: 996 Last visit: 03-24-2006

Hi- I was there....and some still say the same to me. But like you said...he is Elijah, and we love him any way shape or form...it does not matter to us! My husband and I jsut talked tonight about this....he sat and held me while I cried, until I realized..... I am so in love...our lives we live are to be loved, to love....family and friends are our life....and our children are ours, they will always be with us....and we with them. DS or not.....We surround ourselves everyday with family, at the end of the day this is all we have....so in the end...it does not matter... Being a few months or actually weeks into this, I struggled, My God I struggled, and still do. It was always so nice to hear, the think Matthew should be retested...or he may have mosaic....or he does not look it. I still get that, but I find....In the end he is jsut Matthew. A diagnosis won't tell me who my 9 month old baby is. I know him now.....I know what it means when his bottom lips sticks out and his eyes squint....I know what every single cry means, I know his every movement...you just know and love. I am so sorry to ramble on to your post. BUt I have been there...I am there at times. You DO have a BEAUTIFUL little baby...he is just PERFECT! So hard to believe how the time will pass.....enjoyy every single moment....I admire your strength, your compassion for others and your love for your little man. Thank youfor sharing your pregnancy...your birth ....and now your angel.... __________________ Tara Mommy to... Kyle 1/28/00 Krystin 12/08/02 Matthew 6/12/05

03-16-2006 08:36 AM
Tigger   Senior Member Location: NSW, Australia Registered: Jan 2006 Posts: 113 Last visit: 03-24-2006	We had Talitha tested just so we knew for sure. It also helped my husband deal with it as he likes things in black and white. It's your call. I have to say that he is an extremely cute little man. __________________

03-16-2006 08:54 AM

lilpayton   Senior Member Location: Bristow, Virginia Registered: Jan 2006 Posts: 216 Last visit: 03-24-2006

Did you have an amnio or what was it prenatally that triggered them to tell you he had DS? I'm sure this is all in another thread, but it is easier to just ask LOL Did they never do a karotype on him then, obviously? If I were you, I would do one. That way you won't wonder and if anything, his diagnosis (or lack thereof) is an important part of his medical history/future. Keep us posted! __________________ Bethany Mommy to Mason (1/13/04) and Payton (DS) (1/7/06) http://www.caringbridge.org/visit/paytonbalsis

03-16-2006 09:05 AM

lespring   Super Member Location: Twin Cities metro area, MN Registered: Mar 2005 Posts: 3743 Last visit: 03-22-2006

Oh man. WHY do doctors says stuff like that? You know, they must not realize that we go through "does he REALLY have it? I can't believe he REALLY has it!" without them adding to that. UGH! If it makes you feel better, have him retested. But I think OB's just don't see very many babies with DS. Babies with DS don't have super strong features like older kids or adults do. Because they don't see them very often, they wouldn't recognize it if they saw it. I can see it in his eyes and ears. Especially in the fourth picture of this thread. http://downsyn.com/forum/showthread.php?threadid=12973 Later today I'll post a picture of neborn Angela. Looks just like Elijah only with dark hair. __________________ ~Leah~ mom to Noah 18, Tyler 17,Angela 9 (DS) downcues.com

03-16-2006 10:02 AM

Hannah's mom   Senior Member Location: Adironadack Mountains, Upstate NY Registered: Jul 2001 Posts: 927 Last visit: 03-24-2006

I think it is important to have a Karotype done to determine what kind of DS he has.It is a good thing to have in his medical records.You can find out if he has trisomy 21(the most common form)translocation or mosaic DS.I agree with Leah, a Lot of Ob's don't see many kids with DS.My Dr said the same thing about Hannah when she was born, that she couldn't "see it" and asked if Hannah had mosaic DS.When I look back at baby pictures I definitly see the DS features. __________________ Heather- Mom to Hannah(7)DS and Logan (3) www.xanga.com/Momof2monkeys

03-16-2006 10:22 AM

Madisons Mom   Senior Member Location: Philadelphia, PA Registered: Feb 2005 Posts: 441 Last visit: 03-24-2006

First, Congratulations on your new addition, he is just too precious!!!!! I agree with Leah, some doctors dont' know when to keep their mouths shut. When Madison was in the hospital a couple of nurses said the same thing. I got so upset, my husband said they just don't know what to say. If people don't know what to say they just shouldn't say anything. Why not just say you have the cutest little baby. As for testing, that's up to you, but if you didn't get the amnio then I would get it just to know. It wouldn't make a difference on how much you love him. Plus it might help with getting Early Intervention and other services. __________________ Madisons Mom Carola Madison Theresia born 2-04-05

03-16-2006 10:23 AM

rhonda   Super Member Location: Syracuse, NY Registered: Jan 2003 Posts: 3184 Last visit: 03-24-2006

We had that happen to us too. The nurse after we delivered Dylan didn't think he had ds and at his 2 week check with his pediatrician and nurse they too were questioning it. This was all before the results of the karotype came in. I too would recommend having the blood test done, we found out Dylan had Trisomy 21 and he also had an extra Y chromosome. __________________ Rhonda Taylor 13, Jordan 11, Dylan 2 1/2

03-16-2006 12:43 PM
elizasmom   Senior Member Location: Marin County, CA Registered: Jul 2005 Posts: 536 Last visit: 03-24-2006	Hi, Your little Elijah is so handsome if i had never said it before. I'll add the same - if you haven't had a kareotype i would do it so you know which type. Usually they do it right away. I think they took Eliza's blood on day 2 for the test. Maybe they did it at some point in the hospital? __________________ Liz - Mom to Walker (3/24/02) and Eliza (Ds) (5/6/05)

03-16-2006 01:43 PM

ElijahsMom   Senior Member Location: Waverly, Ohio Registered: Nov 2005 Posts: 135 Last visit: 03-23-2006

Yes, there was a karotype done, when I had the amnio at 23 weeks (which I REGRET and will never forgive myself for.) BUT only 5 chromosomes were tested and only 2 had "indicators". Someone told me somewhere that they had to analyze at least 20-25? I was also reading the fine print of the report and it said that it wasn't to be taken as a definate diagnosis...and that the only form that can't be excluded is mosaic? So I don't know. I know that there hasn't been any testing done on him since he was born. Jon wants to have him retested but, I don't. I just don't. I don't care one way or the other and it's not going to make any difference. Is a result going to make me love him any more or less...? NO. __________________ Elisha: Mommy to Elijah 2/1/06 [IMG]

03-16-2006 01:56 PM

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Abigail'sMom   Super Member Location: Dublin, Ohio Registered: Apr 2005 Posts: 1730 Last visit: 03-24-2006

Doctors can be really funny. When our Abby was born, my OB didn't "see" it; whereas, later that night I told my DH that it looked like she had Ds eyes. We laughed it off, but the next morning the peditrician came in with the same concerns. Later that day my OB came back to say he was shocked. He pulled my file and test results and found nothing to support prenatally Abby's diagnosis. He just couldn't believe it for he too still didn't "see" it. BTW - you should of said something about being at OSU (I am assuming you mean Columbus)! Abby and I would have loved to meet you and Elijah for we live minutes from OSU. PM next time you are in town for I and Jennifer (alexmom) live here. Give that little one a big kiss fom us. __________________ Eli Mom to Abby (DS 10/21/03), James Thomas (01/31/06)

03-16-2006 02:10 PM

McKenna   Senior Member Location: San Antonio, Texas Registered: Feb 2006 Posts: 177 Last visit: 03-24-2006

They tested Darah at birth, but they suspected it during my pregnancy. I didn't have an amnio though. While there was no doubt in my mind, I agree that OB's don't know what to look for. OB's are usually the first docs to recommend abortion and since so many of our angels are aborted at their discretion, they don't deliver too many. I still have people tell me that Darah doesn't look like she has DS...or even funnier, they'll say, "she must not have it that bad!" Most people haven't interacted with children with DS...they just see some adults here and there. When she was born, seconds after I knew she had DS...I could see her features. I knew what to look for. So, a week later when the geneticist visited us in the hospital with "official results" that she had DS, it didn't change anything! I was already in love with her and he could have told me she was blind and it wouldn't have changed how I felt about her! It just helped so much to start giving her the care she needed. Because they know she has T-21, they screen her thyroid and she gets her eyes checked more frequently. We started seeing an ENT just in case she was getting ear infections that the regular scopes can't see, and she sure was. We have her hearing checked reguarly. I can understand you not wanting to test him, but I think it may be important to just see what type he has. There's also other chromosomal abnormalities that are similar to DS, and knowing definitively will help his doctors make future decisions. If there's not a definitive diagnosis, his insurance may not cover some of these screens that our kids need. __________________ ~McKenna~ Mom to Darah Faith (8-11-04) Darah's Website

03-16-2006 02:24 PM
YankeeMom   New Member Location: Registered: Mar 2006 Posts: 11 Last visit: 03-22-2006	Our insurance company pays for all of Katherine's early intervention. I'm pretty sure the definiative diagnosis of trisomy 21 makes approval of this coverage a little less difficult (note I did NOT write easy just "less difficult" ah I love insuance companies.) You may want to consider if having him tested will help you in that way.

03-16-2006 02:29 PM

Koby'sMommy   Senior Member Location: South Carolina Registered: Feb 2005 Posts: 651 Last visit: 03-24-2006

WEll if ONE has the extra chromosome...he has DS...that is ALL it takes! So don't worry about it! He has Down syndrome according to that and you love him now no matter what! I would say just enjoy him! I was so hell bent on getting the test resluts back that for six weeks I went back and forth, so don't do that to yourself, you love that baby no matter what!!!-Court __________________ Courtney-Wife to Chris- Mommy to Koby (12/16/04) "Attitude, is the Disability"

03-16-2006 02:35 PM
lespring   Super Member Location: Twin Cities metro area, MN Registered: Mar 2005 Posts: 3743 Last visit: 03-22-2006	Well, I think it's really important to find out what type he has. If he has mosaic DS, you need to know if you or his dad are carriers. If you are, you have a 50/50 chance of having another child with mosaic DS. __________________ ~Leah~ mom to Noah 18, Tyler 17,Angela 9 (DS) downcues.com

03-16-2006 02:48 PM
alexmom   Senior Member Location: Hilliard, OH Registered: May 2004 Posts: 617 Last visit: 03-22-2006	Wouldn't hurt to talk to the ped about it. I agree with Leah....you will want to know what type of DS he has. Shame on your doctor....as much as we all go through in the beginning, she shouldn't have added to your stress. __________________ Jennifer - Alex's Mommy (3/24/04)

03-16-2006 09:49 PM

Grandma to Olivia   Member Location: Registered: Sep 2004 Posts: 83 Last visit: 03-24-2006

When my granddaughter was born it seemed apparent that she had DS. For one thing she had the beautiful almond shaped eyes We were also fortunate the OB that delivered her has a nephew with DS. So, he was very familiar with DS and was almost positive she had it. But, they did do the Karotype to see what type DS she had. She has Trisomy 21. I agree that your son should probably be tested to see what type he has. By the way, he is so precious! My husband met someone who is a pediatric dentist, who also happens to have a son with DS. He told my husband that he has treated many children with DS, and with some of them if you didn't know that they had DS, you wouldn't know they had DS. In other words, just like typical children, children with DS have many different traits, and levels at which they function. Many are so close to being typical, that it is so hard to tell. ~Cindy~

03-16-2006 10:14 PM

DanielsMommy   Super Member Location: Rhode Island Registered: Sep 2005 Posts: 1408 Last visit: 03-24-2006

I had somewhat the same experience. Since I had several u/s..and a level 2 and didn't have any markers....when Daniel was born, they told me they suspected mainly because of the heart condition. They told me if he didn't have the heart defect, he may have gone undiagnosed for a period of time. I had him at a smaller hospital and they very rarely have children with Ds born there. As a matter of fact....in my whole state...there are only 15 or so per year that are born with Ds...so it makes sense that doctors don't see it all that often. Daniels karotype states 5 cells were tested....and mosaic cannot be excluded. Meaning...they can't say for certain he is not mosaic. So...I asked my ped if he should be re tested. She told me no....it wouldn't matter. Science does not yet know what cells control what in the body. She explained to me that you could have 1 cell with an exta 21 and that could be what determines your iq or if you will have a heart defect. So, in the end...she said she would hate to see Daniel have blood taken again purely to see if in fact he is mosaic. Because in her opinion and in mine as well...it wouldn't change a thing. He is who he is. __________________ Lisa Mommy to Elayna 10-1-02 and Daniel Ds 6-7-05 Always have hope....Without rain, there can be no rainbows.

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