DownSyn Forum

luvnlife · Posted: April 02 2009, 6:12 PM Post subject: Hello!

Hi everyone! I've never even been on a forum before, never mind actually becoming a member, but here I am! My name is Jenita, I'm 25, and Erik, my husband of 5 years, is 28. We recently had our first child, a beautiful little boy! We did not know before he was born that he had Down syndrome, but for some reason, neither of us were shocked or upset. He was just so stinkin cute, what's not to love?!!! He was born on Nov 14, 2008 and just had an AV canal repaired last week Wednesday. He is doing great from a cardiac perspective, but he is having some difficulty with his bowel movements. They suspected he may have Hirschsprung's, but so far the tests have come back negative. We are just waiting to hear back on one last test. Hopefully it's negative too!! I love reading about everybody's families and am learning so much. I'm not sure how to post a picture yet, but will try and figure it out. [/img]

huskies9798 · Posted: April 02 2009, 8:22 PM Post subject:

hello & welcome to the family cant wait to here more about your little bundle of joy! btw we love pics Wink

_________________
chris
mommy to brooke ds 8-30-04 blake 1-24-07
ss derek 1-19-94

teddyjoe · Posted: April 02 2009, 8:47 PM Post subject:

Welcome! What's the baby's name? And yes, pictures please!

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Jennifer
Teddy Joe's very proud mommy.

luvnlife · Posted: April 02 2009, 8:47 PM Post subject: I figured it out!

Here's a pic of our family taken two days after surgery.

JLUNARES · Posted: April 02 2009, 9:08 PM Post subject: WELCOME

my son is 4 days older then yours!!!! he was born on the 10th of november! you are right he is a cutey!!!! oh i forgot welcome to Downsyn the best place on earth!!!! i love this place..... Very Happy

congratulations on your new baby boy!!!!!!!!!!!!

_________________

Jackie & Ramiro Sr. Parents to Ramiro F. Lunares (with God 99') Angelina - 12 Mia - 9 Ramiro Jr. - 4(Ds)

earlyam · Posted: April 03 2009, 3:35 AM Post subject:

Hi and Welcome. your little boy is a real cutie Very Happy

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Jo, Mum to Georgia 11/11/03 ( BIG High School Musical fan) and Ethan 16/12/07 (DS)

Helen · Posted: April 03 2009, 4:03 AM Post subject:

Great to have you on board. This place was the first ever forum I joined and I have been addicted to it for over 5yrs now!!! Your little man is gorgeous. So glad he did well with his AV Canal surgery - I remember my Matt going through the same thing all those years ago! Anyway, good to meet you, x

_________________
Helen

Mum to ...
Rachael, Matt - DS & Autism - and Hannah. My gorgeous kids!

Annieo · Posted: April 03 2009, 6:31 AM Post subject:

Welcome to downsyn! You've come to a great place.

I'm in complete agreement that your little man is pretty stinkin' cute!

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Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul, and Alice
www.caringbridge.org/visit/johnbremer

JanetG · Posted: April 03 2009, 9:15 AM Post subject:

Welcome and congratulations!! He is definitely a cutie!! You've come to the right place for love and support. Smile

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Janet (45) and Jeff (45)
Joshua (angel) '85 (1 day old)
Sarah-age 23
Jaret-age 6
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

Momof6 · Posted: April 03 2009, 12:40 PM Post subject:

Welcome and your little man sur eis a cutie.

This is a great place to come. My little guy was born 9/21/08 with Hirschsprung's. Have they done the biopsy? Is that what your waiting for. Let us know and again welcome to the family.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 19, Chelsea 16, Connor 14, Logan 9, Cody 6 & Austin 4 ( DS & Hirschsprungs pull through 12/8/08 ) diagnosis 10/28/10 Colonic Neuropathy, 12/16/11 dx with seizure disorder, neurogentic bladder...Monti Cath 11/9/12
http://www.caringbridge.org/visit/austinpaquin

I think I can, I think I can.
Climb the highest hills in all the land.
(If you think you can, you can.)
He could and he did !

I say CHEESE !

LinMac · Posted: April 03 2009, 4:28 PM Post subject:

Congratulations on your new baby boy! He is cute! What's his name?
This is the first and only forum I am a member of. Joined three years ago.
You'll love it here!

_________________
Linda & John
mom to Hannah Kate (Age 14 ), Robert (Aged 8 - DS)

First day at school

luvnlife · Posted: April 04 2009, 12:05 PM Post subject:

His name is Blake. Thanks for all the welcomes! I've been on this site SO much in the last couple of days - I can't believe how much you can learn here as opposed to trying to read up on these things separately. Love it!!!
Oh, and they did the biopsy on Monday, and apparently they did two separate tests on the tissue. THe first test came back negative for Hirschsprungs, and we are still waiting to hear back on the second. So it sounds promising. He was on Lactulose for the last 3 days, and is having at least one bm per day so I'm thinking he's fine?! I won't be giving it today, because I think it makes him very crampy, and his stools have been very loose, so we'll see what going without does.

kittycat3376 · Posted: April 06 2009, 5:34 AM Post subject:

Hi, and welcome. Your little guy really IS a cutie. I'm lovin' that little mohawk!

Constipation (with or without Hischsprung's) is VERY common for kids with DS. If your little guy doesn't have HD, or if he does but the constipation is still bad after the pull through surgery, ask his GI about Miralax. It's a laxative that really tends to work great for our kids. Our GI wanted David to use it daily, but it turns out 2 to 3 doses (1 dose per day) is enough to clear him up for a month or two. Lots of other kids here on the group use Miralax too, some occasionally like David, and some daily, but I've never heard of any kid having a bad reaction to it.

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http://www.carepages.com/carepages/DavidLucas

sarahmsam · Posted: April 06 2009, 1:22 PM Post subject:

Hi and welcome to downsyn!! Your little guy is SO stinkin cute!! My husband and I felt the same about our little guy Braeden, "whats not to love" you said it perfectly!!!

_________________
Sarah
Mommy to Our little Rock Star Braeden
Born 4-12-07

kctahoe · Posted: April 06 2009, 6:04 PM Post subject:

Welcome! My name is Kim, and I and mommy to Charlie (3) who has DS, and to Calvin (1), who has the standard set of chromosomes. I too was 25 when I had Charlie, and we did not know he would have Down Syndrome. Like you, we were not bummed out for long. Charlie is some amazing. And, honestly, I think babies with DS are way cute! Glad you joined us! Be sure to ask about constipation issues in the questions forum. Lots and lots of wisdom on this board!
K

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Kim. Wife to Ray, Mommy to Charlie (DS), Calvin, and Miles.

mellysmom · Posted: April 07 2009, 8:36 AM Post subject:

Welcome!

We didn't know our daughter had DS until she was born. I held her as soon as she was born and had the same reaction you had! She was soooo stinkin cute! Then they said DS and I thought someone hit me over the head with a board. I was heart broken, but I still could get over how cute she was! LOL!

You're little guy is adorable! Have fun with him.

Michelle