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Desperate for Potty training ideas. PLEASE HELP


 
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Yailet
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PostPosted: April 08 2009, 9:31 AM    Post subject:
Desperate for Potty training ideas. PLEASE HELP
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I'm writing to you guys 'cause I'm desperate and frustrated.
I've been home with Daniel since monday, I'm taking Daniel to the potty every 30 minutes, if he doesn't pee I take him back every five minutes for 1 minute until he either pees or has an accident.
The issue is he doesn't want to do pee pee in the potty, he waits 'till I take him off and pees a minute after. He is obviously doing this on purpose.
Have you guys gone thru this experience?

oh by the way, Daniel is going to be 5 in June, and we've been taking him to the potty since December, but we were using pull ups and that didn't work. our deadline is August for Kinder.

PLEASE PLEASE HELP

UPDATE: I just downloaded a potty training manual from ebay, and the first tip is to leave the child without underwear the first day. I already took away the underwear and I'll try it tomorrow the whole day. I'll let you guys know if this helps.

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LinMac
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PostPosted: April 08 2009, 10:00 AM    Post subject:
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Quote:
He is obviously doing this on purpose.

Not necessarily. He might have little or no sensation that he wants to pee, or limited bladder control.

I have been working on potty training for six months now. Robert has a bladder of steel and can hold on for hours! So that leaves me with little time to teach him what is expected for him. I have only had two wees in the potty in six months....yea that was two wees!
He either wees in his pants, training pants when were out, or usually in his over night diaper! But he is out of day time diapers, will sit on the potty when instructed, can pull up and down his pants, tells me if he is wet after the event. I am hoping this will change as he get older.

I bought a lot of new underpants and new pants when we started the training. We also have a bag of clean clothes with us in the car.

The upside to having such a steel bladder is he is dry for most of the day. I am hoping Robert will learn what is required of him soon. He just isn't getting it right now.

My tip is not to get desperate or frustrated. Remember potty training is a very BIG milestone for our kids. It can take a lot longer for them to learn than we'd hope or expect. They can also pick up on our anxiety and thats not good neither.

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PostPosted: April 08 2009, 11:08 AM    Post subject:
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Does Daniel go to school? The biggest motivator for Austin was SEEING the other little boys use the urinal. He KNEW he was the only one in pull ups and he didn't like it.

So, I would have him stand up when he urinates. And if you'll apply pressure to the lower abdomen... he'll go if his bladder is full.

But seeing another boy use the restroom is crucial. Make sure his teacher take him to the potty and observe how everyone else is doing this. lol

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PostPosted: April 08 2009, 3:09 PM    Post subject:
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This may be long but I've copied and pasted our tips and hints that we send out to parents when they ask from our support group in the UK ( remember that nappy is a diaper ) if you want to have a read through


Toilet Tips – Remember every child is different and what works for one child might not necessarily work for another child. Here are a few parents stories of what worked or didn’t work for them and hopefully you can try and pick up some tips for toilet training your child with Down’s syndrome.

Remember there is no easy way and also be patient. Don’t expect a child to have done it when they reach a certain age but do reward all progress no matter how small or insignificant it might seem

We had toys and books in the toilet and by the potty. Also potty in front of the TV. Bought a selection of potty books.
Lot of signing toilet Used both the potty and toilet, so easy when you're out and not an issue later on.
Put Sam on the potty/toilet every 30 mins (nursery did it every 10mins !! ) and made sure he drank lots to increase the chance of a hit !
Gave Sam a reward for having a wee on the potty/toilet – used stickers/grapes/raspberries
Initially, put a nappy on when we went out just in case but put pants on under nappy and still took Oliver regularly to the toilet.
Took Sam to the toilet when I, his brother or Daddy needed to go..
Let Sam flush the toilet when he did something in it.
Sam is now dry during the day - 9 weeks on and 90% of the time at night. He is also clean during the day but that took longer than being dry. If he did have a poo in his pants we would make sure we explained that poo goes in the potty/toilet and make sure he saw us put it in the toilet.
Sam doesn't always tell me he needs a wee but will about 70% of the time - I still take him regularly.
We put pampers bed mats on the sofa and chairs and removed cushions and rugs - which made clearing up accidents less stressful.

Tip - great way to clear up wee accidents - just use a nappy !

You have to try and keep calm and don't get angry if you have lots of accidents.

Charlotte ( mom to Sam 5yrs )

One thing they suggested that really helped was to buy a load of really cheap normal pants and put them on under the nappies so they know their wet.
To start off with, you have to be really careful to check at least every hour so they don't get sore if they have had a wee, but it took George no time at all to start letting us know. If they're wet, just put them in the wash, if soiled, bin them. Apparently because nappies are so absorbent, they are far too comfortable, and being very logical, our children can't see the point in bothering to wee anywhere else!

We also had a star chart. It was weeks before we got any stars at all, but once he got one, they started coming thick and fast.

The only other thing I remember was to make sure school took him to the toilet with all the other boys so he could copy what they were doing even if he didn't wee. He started weeing at school a long time before he did at
home. I was surprised to find that before I'd asked, they'd always taken him to the disabled toilet while all the others filed into the boys urinal en-mass so he was really missing out on this important boy experience.

Vicky ( Mom to George 9yrs )

We used a cooking timer as it provided the regular, audible timing/warning needed to help Jack ( and us ) to get into a routine of the toilet. The timer, being small and easily carried, with only one type of
'ping', ensured a consistent signal was given, no matter where Jack was - at home, at school or out shopping. ( Tip – don’t use the same timer to cook with, otherwise you will end up in trouble!!! )

We began with 20 minute settings for the 1st day. Then 30 mins for the next and 45 mins when he went to school. He got the idea of being regular going to the toilet but it was ages before hhe was completely dry. My advice is not to expect it to happen overnight and although its hard be prepared for it to be a long process as its really not worth rushing them as this is when accidents occur and before you know it you are taking 2 steps backward instead of 1 step forward

Helen Mom to Jack ( aged 9 years )

My child very slow with toilet training. I tried to be easy-going but still got really emotional about it. I think that she picked up my anxiety and took ages to get clean/ dry. We left her clothes off and open and then when she started to have a wee we quickly put the potty or stuck her on the toilet and then we used to use a sound like “SSSSSS” everytime she went and then when we put her onto the toilet and we then did the sound, eventually she started to do it

It helped to to talk to other parents to know that you are not on your own and think that your child is very late in managing to get toilet trained. As soon as I started talking to other parents I realised that my child was not the oldest in the group to be toilet trained even though I had previously convinced myself she was.

Fiona Mom to Lizzy ( aged 12years )

When Bethany started in school last September (aged 5.5) she was not toilet trained in the slightest.
I sent her in pull ups but I went an old fashioned school outfitters and bought up a very dusty, back of the cupboard, supply, of "navy knickers". They were massive things which hid all of the pull up and I felt that if other kids caught sight of them then they would just pass them off as "pants". As things began to improve toilet wise ( about 6mths later ) I began to send her in knickers and tights but accidents were frequent, well, every day. I sent enough pairs of tights and knickers to school to cover what I thought would be a normal day and if she used them all then she came home in school spares. I must add that at this point she owned about 30 pairs of knickers and about 15 pairs of tights so that I could keep on top of the demand (I am not joking about these figures). I would also add that this all sounds very calm and sensible on paper, but I found it all very tough emotionally.

The keeping dry "suddenly" happened but then we entered the (as normal) phase of living on a knife edge because we lived our lives as though she was toilet trained but of course there were many accidents. The final hurdle for us was poo. I have to tell you that yesterday was a red letter day because she did a poo on the toilet. This was signficant because a) we were not at home b) she had to realise she needed poo and sign for toilet c)wait until we found toilet (we were actually at a hospital appointment, not on particularly familiar territory) d) she did not do it in her pants!!!!!

Angela Mom to Bethany ( 7 years )

My Lydia was toilet trained at school when she was 7. She had spare clothes at school and the thing that seemed to work was being pre-emptive and taking her at 9am, 12 and 2 or 3pm and then after school.
They /we (kept the schedule up at home) started when she was 5 so as you can see it took a while but right away she only had the occasional accident every couple of months unless someone forgot to take her then it was pretty much guaranteed she would have one. So I'd vote for taking them regularly to go to the loo but not too frequently so they rebel.

Tamsin mom to Lydia ( 7 years )

William was about 9 years old when he was toilet trained finally. Tips that we found helpful were, we used to put a piece of a cotton ball in the toilet and asked him to pee on it which he found highly amusing so it used to make toilet times really fun and then he would want to go there. We also even put some shampoo in the toilet once and he thought it was very amusing to pee and make bubbles in the toilet

It wasn’t easy and it seemed to take forever to get there and emotionally it really drained us. It definitely helps to be able to speak to others that are going through the same thing or who have been through it as it gave us a light at the end of the tunnel. Two years sounds like nothing now we have done it but 2 years is a very long time when you are going through it

Timothy Dad to William ( age 9 years )

Chloe was about 3 years old when we first started toilet training and she just didn’t get it at all so we left it another year and started when she was about 4 years. It took about 18mths I would say in total before she was dry in the day ( We still have pull ups at night – we are working on that )

One tip that we found helpful was using a dolly to show Chloe what she had to do. We bought one of those dollies that could wee and so we had it sitting on the potty going for a wee and did role playing and then it was Chloe’s turn.

I don’t know whether it made the process any quicker but we do feel that by having the role playing with the dolly made it much easier for her to understand and also it helped not to make it into a drama ( even though we felt traumatised by the whole toilet training issue ) and tried to make it as happy and light hearted as possible

Sarah mom to Chloe ( 5 years )


Sophie was 71/2 and no where near potty trained and I wondered if it would ever happen. One of the things that we tried was putting real pants inside nappies. Be prepared for lots of washing and to start with we tried it on weekends when she wasn’t at school. This helped her feel wet so we could then reinforce the “you need Toilet”

I have to say that we tried for ages different things and then suddenly it just happened, but it did seem very frustrating waiting for that magical moment of it just happening. ( We are still waiting for that magical moment for night time!! )

Alice mom to Sophie ( 10 years )

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THESPILS
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PostPosted: April 08 2009, 3:33 PM    Post subject:
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We had the same problem with Hunter for the past 7 months. Then last Friday, I think when I caught him peeing and dragged him to the bathroom I scared him enough to stop going (I scooped him up FAST) and when we sat down, it took a while, but I knew he had to finish, and he finally went, thought it was the coolest thing ever (I guess that's a boy thing) and hasn't had an accident since. He has only initiated it twice--once was in public, I was so proud Razz . Other than that we have to take him every 2 hours or so. It took what seemed forever, and I was at my wits end, but we are practically there Very Happy Keep the faith.....

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PostPosted: April 08 2009, 4:27 PM    Post subject:
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Daniel usually has the accident right after we take him off the toilet, that's why I think he is hoding it, he usually will go every half an hour if his bladder is full, so we are following him around the house to catch him in the act.
Today I left him in the toilet for 45 minutes twice and he finally peed after both times, but I don't like doing this, i think it's too long.
Has any of you done something like this, has it worked?

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PostPosted: April 08 2009, 4:53 PM    Post subject:
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Quote:
Today I left him in the toilet for 45 minutes twice and he finally peed after both times


Just my opinion...but I think that's a bit long. I completely identify with your frustration because my Daniel does much of the same thing. In my experience training my daughter and kids in my daycare....they are ready when they are ready...and not a second sooner. It takes alot to know what it feels like to need to pee, and actually CARE about it. Some kids (Ds or not) aren't bothered by a wet diaper and aren't motivated until they are ready. Just the feel of the wet diaper is enough to send some kids running to the bathroom where others can sit in it and not miss a beat.

Good luck....I know both our Daniels will be out of diapers (someday Smile

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PostPosted: April 08 2009, 5:25 PM    Post subject:
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We are in the middle of potty training. Plus, I'm trying to do two at once. My son, with Down syndrome, my daughter (typical). And, they're of different sexes which complicates things even more. Nick SEEMS to be trained at school. He pees there and has only a few accidents, maybe one per week. But at home, it's a whole different story. At the end of an evening with too many accidents, we just put him in diapers. It's been so intense trying to train Nick that we've put my daughter on the back burner. I don't have any advice, just want to say I'm in the same boat.

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PostPosted: April 08 2009, 5:26 PM    Post subject:
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I have to agree it's much easier when kids are ready, and it would be a lot faster if he was but I'm trying to find a way to help him click that switch. we are due to start kinder in 4 months, I think he would benefit from being in a regular kinder with extra assistance, I know according to the law they can't deny him that placement due to diapers but I'm know that would be extremely inconvinient for the teacher.
I read a couple of books in potty training and they all said to do it cold turkey, that sooner of later they would get it.
I wonder if this also applies to kids with DS.

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PostPosted: April 08 2009, 6:18 PM    Post subject:
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Hola Amiga!
Elias TIENE que estar entrenado para Agosto!! talk about pressure.

He will began officially public preschool on August and they want him FULL trained. YEEAH I freaked out when they told me, and since February we have been taking him to potty or toilet, and sometimes he peed others not

Right now he's attending a private preschool, and they have reported me that somedays he just runs to the potty and do it. yeah well i was unsure, lol since i've never seen that on our house

So on Monday we began las vacacines de cuaresma, and i decided to take off the diaper and just leave him with underware and see how it goes, well, he goes every hour, in 3 days just twice has run on his own to do it, he has had 2 accidents per day...

well is the beginning and Im hoping that reallllyyyyy he can be full potty trained by august, because if not we dont know what are we going to do

BUUUUUUT we found a great motivator : MONEY. yes, he likes money, and he likes to receive money when he goes, so, well, maybe that's the clue

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PostPosted: April 09 2009, 5:46 AM    Post subject:
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PostPosted: April 09 2009, 6:03 AM    Post subject:
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The naked thing really works for little boys... I pretty much potty trained my 2 year old twin great-nephews (typical) in one day with no pants on. We spent the day on the screen porch (thin outdoor carpet) last fall. The potty was out there with us and there were tons of toys as well. I put them on the potty about every 10 minutes at first, but the big advantage was that I could see when they were going to go and get them there, or at least make a noise when they started to go that startled them enough to stop the flow. I then could get them on the potty and they would finish.

Never though I'd spend so many hours staring at two little you-know-whats, but it was well worth it!!

I planned to use mini-marshmallows for rewards, but they didn't seem to care about that at all and I stopped. I made up a silly song/dance that we did every time one went on the potty... they loved that!!

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PostPosted: April 09 2009, 8:55 AM    Post subject:
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Oh Yaliet! I can feel your words so closely. We too as you know want Meg in typical Kindy and she will start in August. DH and I needed her potty trained for ourselves because we felt she could not be in a typical classroom in pull-ups...it would be an obvious difference....kindy's associate diapers with babies and we did not want to give Meg that stereotype. I thought we were doomed.
We had a meeting with Meg's IEP team and they all suggested 1. being home for a long period of time (do not go anywhere, camp out) 2. buy the book potty training in a day 3. Get the toilet training doll.
We actually only had to do #1. We bought the book and the doll but never read it or opened the box the doll is in.
It was Christmas break and Joe took a few days off and we tag teamed her. Once we got her to pee once on the potty she didn't stop (she would usually do exactly like Daniel, pee right after, like a slap in our face). We took away the pull-ups all together and I just had to wash clothes and sheets a few times a day. It took a few good weeks to get her time trained....but a few months in, she goes all by herself when she needs to, no help, she even gets through the night with no accidents....I think the pull-ups were our crutch for so long that they were just diapers in and of themselves...I would ditch them and just expect to be in it for the long haul. Can your DH or another family member help you? Having 2 people there to tag team really helped.....I am here if you ever need anything, good luck, he will get it!

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PostPosted: April 10 2009, 1:58 AM    Post subject:
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A bit of good news.....I got a third wee in the potty last night!
Had Robert on the potty all day....nothing....but I knew he needed to pee so I gave him load of drinks....and at 8:30pm he did a big wee in the potty!

My problem with Robert is he is holding back and only weeing when I put his nighttime diaper on. He's normally in bed long before 8:30pm each night!

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PostPosted: April 10 2009, 4:39 AM    Post subject:
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Talitha has started taking her nappy off as soon as she has peed or pooed so I figure it is time to toilet train. Trouble is, she doesn't have a clue until she has already done it. She will happily sit on the potty as soon as I take her wet pants off but not until then. She did tell me as soon as she did a poo in her pants but not before.

Personally I have found it much easier to train boys than girls. It is so much more fun for boys because you can get them to pee on trees and in buckets and such and they can practice writing their name with their pee etc. All lots of fun but girls don't have such options.

I am going to try and get hold of a peeing doll and see if she will copy it.

Today there was just too much poo (lounge, floor, curtains) and we reverted to nappies at around 4pm. I will try again tomorrow.

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PostPosted: April 10 2009, 1:02 PM    Post subject:
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update:
Yesterday daniel had one accident in the late morning, then he didn't go until I put on a pullup for the nap, woke up at 4pm and didn't go until I put on the pull ups to go to sleep at 9:30 Shocked I can't believe this kid can hold on to pee for so long Shocked
I think he is feed up with me taking him to the bathroom and just decided not to go if he doesn't hava a diaper on. Sad
So I downloaded the 3 day potty training book, and i says not to put on diaper at all, and not to take him to the bathroom until he either tells you or he has an accident.
Today he woke up with a diaper full of pee, and he didn't go until 2:30 since 8am, once again I can't believe it 6 hours without going.
I took him to the bathroom so he could see me pee (I know this is disgusting but I'm desperate) and he squad and started to pee at the same time, so I picked him up and put him on the toilet, and he started to pee. yey!!!!!!!! I'm so excited. hope this starts a pattern.
Today I'm not putting pull ups on, let's see how it goes.

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PostPosted: April 10 2009, 4:33 PM    Post subject:
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Watching you and your husband pee and poop is a great idea and helps model the behaviour to him. Other ideas from the continence nurse here are to try blowing something (bubbles or a balloon) while sitting on the toilet, running the tap, putting cheerios in the toilet to try and aim at, wearing pants under the diaper to get the feeling of being wet, having a big a drink and then sitting on the toilet 20 minutes later, not sitting for longer than 5 minutes, big HUGE cheers and partying when it goes in the toilet!

Callum became urine trained last summer (age 5 1/2), at first he was time trained and now he will let you know when he needs to go. He still isn't poop trained but we're getting there slowly.

Don't let the school thing pressure you. Callum attends a mainstream school and is the only child with special needs in his class, last year he attended full time and wore pullups for the entire year. Yes it wasn't his 1:1 favourite job to change him but it was what Callum needed and didn't exclude him from being in a regular classroom.

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PostPosted: April 10 2009, 6:44 PM    Post subject:
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If TD boys can take longer to potty train then girls then it just stands to reason that boys with DS can take longer than girls as well.

I've read the 3 day method and tried it and it did get my then 20 month old to finally pee with pride on the potty but he was too immature and made it into a game. Clara (DS) has trouble knowing when she has to go but her communication did improve during her week of 3 day training. She also went from peeing in her pants 5 minutes after a potty trip to peeing on the potty more. When she's ready I think that method combined with some Autism methods will work.

Modeling is a biggie - how else will he know what he's supposed to do? That's why potty dolls are so helpful. Also, make sure he knows how to tell you - Clara goes to the bathroom and knocks on the door. We keep the door shut and knock everytime we go in and even though she can sign and say potty, she likes this better. In the 3 day method it is not about pressure and frustration, potty time is short because you are trying. We also make a potty sound (pssssss) when she goes then use that sound to encourage her. A little pressure on the bladder at the same time helps and that taught her to bear down and try, which made the difference between her just sitting there and actually trying to pee. We blew bubbles and did a lot of fine motor games on the potty. And we count to 20 every time before she gets off just in case there is more she can't sense - that extra time has caught a few pee's that would have gone on the floor.

I stopped with her the last time because she was still having 3 or 4 wet pants a day. If you figure that she is holding it for 2 hours and up for 12 to 13 hours, that's too many accidents to consider her potty trained. If she is wet that often in panties or pullups then that's about how often she's wet in a diaper,and I did not want her to get so used to being wet she lost awareness. I'm going to try again in a week or so.

I know a lot of boys who did well with naked time. I tried it with Clara
but with wall to wall carpet and a 2 year old around it was too stressful for me to deal with. There are times (like this) when I think she's ready to try again but I have too much going on to feel like I can be as patient as I need to be and keep it fun enough that she wants to do it.

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LinMac
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PostPosted: April 11 2009, 12:28 PM    Post subject:
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In order to get Robert ready for school we have been talking with the psychologist attached to our service provider about toilet training. She thinks Robert has learned to hold with his pee or poo until he has a diaper or pull ups on. She said we must measure success if he wees or poos in his pants. Forget about the potty until he has learned to let go!
We have to give him tons of praise and rewards for letting go without the pull-ups/ diaper.
The next stage is to get him to do it in the potty.

Yesterday we had no pull ups on and he did a big wee on the floor...tons of praise!
Later in the day he did poo in his pants....tons of praise and I put him sitting on the toilet after he was cleaned and told him he does poo in the toilet!

He was dry/ clean all day after that.

Quote:
I can't believe this kid can hold on to pee for so long Shocked

I can believe it....Robert has held from 8:00am to 8pm without peeing or pooing! The ability to hold is preventing us from teaching him what is required.

Naomi is right about school. The fact that Robert isn't potty trained is in his favour with regard to getting a one to one aide! I know its not ideal I'd dearly love him to be trained but he's not fully ready yet!...but he is making progress!

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PostPosted: April 11 2009, 1:27 PM    Post subject:
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THANKS A MILLION FOR ALL YOUR GREAT IDEAS,
I was so frustrated when I first wrote this post, but reading all your post and the 3 day potty training manual has made all the difference, once again downsyn has been a lifesaver.

If I could start all over i would definitely follow the 3 day system from the first day, I think that was my mistake to force him to go to the bathroom without him wanting, I think he looked at it as punishment, specially when I left him there 45 minutes Embarassed , he finally went, but after that insident he started holding the pee.
I'm now using the three day system. and so far today his had two accidents and two times he peed in the toilet Very Happy , at least his not holding it. and this gives me opportunities to train him.
Something else that has helped too is for him to squad, this helps him to start to go, then I immediately put him in the toilet and he starts to pee again, we give him tons of praise, to help the idea to click.
I'm planning to keep him from school next week, he definitely needs an additional week on the system.

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PostPosted: April 11 2009, 8:02 PM    Post subject:
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Good luck! It can be frustrating for even the most patient.

Love your siggy pix, your little man is handsome!

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PostPosted: April 18 2009, 2:17 PM    Post subject:
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I know I'm boring you all .....but Robert just did another wee in the potty to night!! Number four in six months!

The interesting thing about this one is no one was in the room and he just went without us having to give him an instruction. He pants were off.

YIPPIE!!!

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PostPosted: April 18 2009, 7:09 PM    Post subject:
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Your are not boring us at all.
OMG that's awesome, it's sinking in, that's great.

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PostPosted: April 19 2009, 12:33 PM    Post subject:
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Got another wee just before bedtime.....I think he is starting to get it! Finally!
Off to give him tons more praise!

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PostPosted: April 22 2009, 3:28 PM    Post subject:
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read below

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PostPosted: April 22 2009, 3:28 PM    Post subject:
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I want to share my excellent news...

Daniel started to go to school in underwear this past monday, after being home two weeks without pampers, he is doing wonderful, they have him on a schedule every 30 minutes.

MONDAY: he had four accidents, but three of them happened in front of the toilet, they took too long to take off his pants, so we switched to pants with elastic instead. and surprise...

TUESDAY: NO ACCIDENTS. He went pee pee in the toilet 2 times Very Happy

WEDNESDAY(today): One accident, one pee pee in the toilet.

I am sooooo happy with his progress. Very Happy Very Happy Very Happy
He hasn't had an accident during the night for almost 2 weeks Shocked Very Happy
and at home he tells me "mommy pee pee" but only after he had the accident, which is a great step for a kid that could run around the house peed without a problem. Wink

My boy is just great. kinder here we come!

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Last edited by Yailet on April 22 2009, 7:29 PM; edited 1 time in total
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PostPosted: April 22 2009, 5:54 PM    Post subject:
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felicidades!! we are doing great with potty too! no diaper to school for one week, and just one accident per day.

yesterday he hold it for 2 hrs!

but still i have not taken the diaper at night, =)


joining your excitment!!

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PostPosted: April 23 2009, 3:39 AM    Post subject:
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Thanks for the update Mami and Ali! Your boys are getting it! Thats wonderful.

I am holding my breath but I think Robert is finally getting it. I have had five pees in five evening on the potty. And he has wet himself a few times,which is good because it means he is letting go without any fear.
Last night he did two wees without me having to prompt him!
Keeping my fingers and toes crossed.....

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