DownSyn Forum

cassangel · Last edited by cassangel on September 14 2009, 7:30 AM; edited 3 times in total

I apologize for deleting my first post... All is so much better now Smile

I have had a renewal and am so happy and in-love with my son. He is so sweet and special. His last cardiology appointment revealed his ASD to be closed Smile

He is clear cardiologically now Smile

Early intervention comes out once a week and he is doing great Smile

Gavin will be 11 months on the 16th and when I get recent pictures developed I will post them Smile

Thanks for the messages and support Smile

oxox,
Cass

_________________
Love~

~Gavin Russell~

~Born 10/16/08 with DS~

"For you created my inmost being, you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made, your works are wonderful, I know that full well." Psalm 139:13-14
~God does not make mistakes ~

http://myangelgavin.blogspot.com/

~Ben'smum~ · Posted: September 01 2009, 9:14 AM Post subject:

((((HUGS)))) Hi, I'm sorry that you still feel this way after 10 months. Maybe you need councelling to help you through this. You have on your signature that "God does not make mistakes" and I believe that also, I believe he sends these gifts to those that are able to care for them. Please dont cut yourself from the life you once had, you can still have it, it may be altered slightly but it doesn't have to change every thing you are! You and your hubby need to find a way to connect again and learn to come to terms with your son (his picture is beautiful by the way Very Happy

). If you ever need to chat we are all here to listen, we are all in the same boat and hopefully we can help you on your road to acceptance.

_________________
Karen- Mum to the world's cutest baby!! Very Happy

Ben

teddyjoe · Posted: September 01 2009, 9:41 AM Post subject:

I'm so sorry to hear you're feeling this way.
Down syndrome is not a bad thing! Look at that little face he has. He is such a precious gift and I think you're so fortunate to have him in your life.

_________________
Jennifer
Teddy Joe's very proud mommy.

earlyam · Posted: September 01 2009, 9:55 AM Post subject:

I didn't get to read your post but I just wanted to send big hugs and say that this first year is always going to be the hardest, such a lot to get straight in your head and totally overwhelming at times.

You have a beautiful little boy and I hope you and your family find the comfort and peace of mind you are looking for

Take care

_________________
Jo, Mum to Georgia 11/11/03 ( BIG High School Musical fan) and Ethan 16/12/07 (DS)

JanetG · Posted: September 01 2009, 9:59 AM Post subject:

Just wanted to send some hugs youre way... I don't know what you are experiencing right now, but know that you are not alone...

_________________
Janet (47)
Joshua (angel) '85 (1 day old)
Sarah-age 25
Jaret-age 8
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

Momof6 · Posted: September 01 2009, 1:54 PM Post subject:

Just wanted to send you some hugs and support.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 19, Chelsea 16, Connor 14, Logan 9, Cody 6 & Austin 4 ( DS & Hirschsprungs pull through 12/8/08 ) diagnosis 10/28/10 Colonic Neuropathy, 12/16/11 dx with seizure disorder, neurogentic bladder...Monti Cath 11/9/12
http://www.caringbridge.org/visit/austinpaquin

I think I can, I think I can.
Climb the highest hills in all the land.
(If you think you can, you can.)
He could and he did !

I say CHEESE !

Me-Shell · Posted: September 01 2009, 3:44 PM Post subject:

I didn't get to read your post, it was already deleted. Your little guy is precious and I know that at times it is hard to deal with everything that comes our way. Cameron is 19 months and at times I still find myself having a hard time with his dx. Then he smiles at me and I know that god gave him to us for a reason.

Big Hugs and always know that you can come here for anything. This is a great group and no one will judge.

_________________

Michelle, Fiance to Wyatt, Mom to Shane (22), Aubrey (19) and Baby Cameron DS (02/06/08 )

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." After all today is the tomorrow you worried about yesterday.

Karien · Posted: September 10 2009, 1:40 AM Post subject:

Some of the other people can comment on this, but sometimes it seems to me, that when our children has some sort of medical problem, eg heart ext, it sort of shift the shock of ds to a health problem, and we have to "fight" for them. Our consern then, is: I want this baby to live...and before we know it, we have acepted ds in a way. The few times that I met moms that had ds children without any medical problems, seem to have a harder time accepting.

_________________
Karien: happily married to Neels
Mom to Ewald (19), Eduan (16), Alvin (12) and KALLEN 6

earlyam · Posted: September 15 2009, 4:43 AM Post subject:

It's so great to hear that Gavin is doing so well and wow 11 months old already Very Happy

I think we all have our dark days. The first year so much is going on and I remember the few months leading up to Ethan's first birthday were a little hard at times as you think about the birth and everything that happened after the diagnosis, very bittersweet and it rocks you emotionally!

Looking forward to seing lots of new pictures of your little boy.

_________________
Jo, Mum to Georgia 11/11/03 ( BIG High School Musical fan) and Ethan 16/12/07 (DS)

~Ben'smum~ · Posted: September 15 2009, 6:07 AM Post subject:

I'm so glad to hear about Gavin's heart being better and that your at peace with yourself again. Please feel free to look for support, help or just to vent even... we're all here with you in the same boat! Very Happy

_________________
Karen- Mum to the world's cutest baby!! Very Happy

Ben

Momof6 · Posted: September 15 2009, 7:01 AM Post subject:

Oh I'm so glad to hear things are better. I can't wait to see new pic's of your little man. Huge hugs.

_________________
~Christine~
Mom of 6
Brandon ADD/ADHD 19, Chelsea 16, Connor 14, Logan 9, Cody 6 & Austin 4 ( DS & Hirschsprungs pull through 12/8/08 ) diagnosis 10/28/10 Colonic Neuropathy, 12/16/11 dx with seizure disorder, neurogentic bladder...Monti Cath 11/9/12
http://www.caringbridge.org/visit/austinpaquin

I think I can, I think I can.
Climb the highest hills in all the land.
(If you think you can, you can.)
He could and he did !

I say CHEESE !

AliMama · Posted: September 15 2009, 10:47 AM Post subject:

I'm SO happy for you--it's wonderful that his heart is doing well That must be a huge weight off!

Hugs,

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-2009

Kenneth's Mom · Posted: September 17 2009, 11:38 AM Post subject:

I'm glad you're feeling better. I'm looking forward to seeing new pix.

_________________
Maureen, Ed, Brian, Kevin, Timothy, and Kenneth

ellenstumbo · Posted: October 12 2009, 6:50 PM Post subject:

Cass, I haven't been here very much lately so I did not get to read your post.
If you need to talk just give me a call or send an e-mail.

Hugs

_________________
Ellen, honored to be married to Andy since Feb 2003 and mom to Ellie (08/21/05) Nina (05/01/06 CP) and Nichole (10/02/07 DS)
www.elliestumbo.blogspot.com

"For you created my inmost being, you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made, your works are wonderful, I know that full well." Psalm 139:13-14
God does not make mistakes