DownSyn Forum

Sarita75 · Posted: January 22 2012, 12:31 AM Post subject: From San Luis Obispo, CA

DOn't know how much energy i have to write right now but i'm so glad i found this site. We have a 3.5 yr old named Lupe and our 6.5 month old Liam has ds.
I am journaling about everything on www.lupeandliam.blogspot.com
My guy's doing pretty well so far, except for his constant congestion. No heart probs, everything is checking out well. Getting OT and PT once a month and craniosacral therapy.
Trying to find the balance between reading everything i can and also just living life normally, one day at a time. How do you do that?
Thanksfor being on this site mamas!

beckysmum · Posted: January 22 2012, 1:44 PM Post subject:

Hello

its not easy taking one day at a time when all you want to do is read up on everything to do with ds , ive stopped that now and have chilled out and just enjoy my girl in the here and now , welcome to the forum , its amazing xxx

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Claire & Chris , Mum and Dad to Bethany 05/03/1998 Calum 03/09/2004 Rebekah DS 13/01/2011

AliMama · Posted: January 23 2012, 12:57 AM Post subject:

Welcome! It's great to have you here! I think everyone adjusts to their "new" life differently--you'll just have to find what feels best to you.

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Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-2009

babystpierre · Posted: January 23 2012, 5:23 AM Post subject:

Hi and Welcome!! Your Liam and Lupe are just gorgeous!! I read a bit of your blog and love your honesty and love of life. My hubby is stationed at Ft. Irwin so we are only about 3 hours apart. If you would like to meet up sometime - I would love to. I know that sometimes that it is a bit scary -- as I remember being fearful of meeting older children with DS when my Gunnar was a baby. But, the offer is there (he just turned 8 in Jan, btw). I am a school teacher so it will have to be when on a weekend... Smile

So, just let me know *secretly hoping you do cuz I want to snuggle with Liam*!

˜Lauri - Gunnar's mom!!

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Sarita75 · Posted: January 26 2012, 4:40 PM Post subject:

Thanks for your responses mamas!

Unity9 · Posted: February 26 2012, 2:48 PM Post subject:

That's a great blog! They're lucky to have you for a mom!