DownSyn Forum

[mij]

KatieB wrote:

Julia is chronlogically almost 8.5 yrs, developmentally 18-20 monthes. she is the size of a 4 yr old I do contribute her significant delays to the negelect, and no stimulation.

that is ashame i wish things could change for homes that are for disabled kids. good luck to her.

[KatieB]

she has learned some things, she is basically non verbal, but can point to letters with about 90% accuracy, can do minimal counting, as she can mimic 1-10, knows a few colors, knows 3 shapes, learning to cut paper, with pictures, we ask her "where is..." and she usually can point to the object we asked of her. A major work in progress, we feel that her life began when she arrived home with us, so that would make her 2o monthes. she is pretty happy, very attached, so that's a good thing. She understands English well, can follow simple commands.
Katie

[KatieB]

Julia was recently diagnosed with a skin disorder, called.vittiglio, think the spelling is possibly correct, and alopecia. It's a pigment auto immune disorder. She has small spots all over her body, just a few spots of alopecia on her scalp, for right now they covered by her hair.
Katie

[KatieB]

As this past Sunday was Easter, my husband and I truly believe, after early 3 yrs since she orphanage, she has major panic attacks about food. She was munching, had a big meal, all day. She would actually stand next ro people and beg, or try to steal food off their plates. Wouldn't be as bad, but she uses her hands to wipe her nose, in pull up, etc. I gave our dog left overs this morning, she had a hissy and was tiring to steal the bowl from the dog. She ate enough for two. Mega med workups over the past few years, food monger.
Katie

[KatieB]

Wow, 3 yrs ago we were in Ukraine adopting Julia.

[TracyR]

Wow! How is she doing today?