DownSyn Forum

Ethan06 · Posted: January 04 2009, 9:56 PM Post subject: one worried mom has answers

hey
We found out that Ethan has West Syndrome a type of Epilepsy. ( what a fitting name) We spent 3 days in guelph Hospital and 9 days at Mac Hospital. He has stopped smiling, laughing and sleeps alot. We are on meds now but they make him very tired. He also go a virus in the hospital and had to have Oxygen for a couple of days. There where other things that we came across when we there but we are dealing with them. We never left his side though the needles and the tests but man it hard to see him cry. We are now working on getting him better.

thanks for all the help

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WilliamTheOutlaw · Posted: January 04 2009, 10:06 PM Post subject:

Our prayers are with you.

William

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Please follow Reece's Rainbow on twitter: http://twitter.com/ReecesRainbow

www.poppiesblooming.co.uk

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QuinnsMom · Posted: January 04 2009, 10:30 PM Post subject:

Thankfully you have answers now. I am praying that he gets the best care from the doctors.

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Karyn, Quinn's Mom -
Mother of Riley (age eleven), Aidan (age seven) and Quinn (October, 2007 - DS, IS, Stereotypical Movement Disorder)
http://quinnscrusaders.blogspot.com/

teddyjoe · Posted: January 04 2009, 10:38 PM Post subject:

I 've been thinking about your adorable little man. I too. hope and pray the gets the best care.

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Jennifer
Teddy Joe's very proud mommy.

Googsmom · Posted: January 05 2009, 11:28 AM Post subject:

{{{{HUGS}}}}

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Jennifer, Momma to The Brookster 4 yrs old

www.specialneedsinmolalla.blogspot.com
www.foundalongthejourneythroughholland.blogspot.com

Me-Shell · Posted: January 05 2009, 12:54 PM Post subject:

aww. Thoughts and prayers for you and your little guy.

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Michelle, Fiance to Wyatt, Mom to Shane (22), Aubrey (19) and Baby Cameron DS (02/06/08 )

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." After all today is the tomorrow you worried about yesterday.

JanetG · Posted: January 05 2009, 1:03 PM Post subject:

Thank goodness you have a diagnosis now. I hope they can get his meds regulated so he can smile again. HUGS!!

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Janet (47)
Joshua (angel) '85 (1 day old)
Sarah-age 25
Jaret-age 8
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

sarahmsam · Posted: January 06 2009, 3:10 PM Post subject:

Hugs and Prayers, were thinking of you.

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Sarah
Mommy to Our little Rock Star Braeden
Born 4-12-07

ellenstumbo · Posted: January 06 2009, 3:34 PM Post subject:

What a cute little boy you have!

I am glad that you have answers, but I am sure this is a bit frustrating to deal with too. You are in my prayers.

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Ellen, honored to be married to Andy since Feb 2003 and mom to Ellie (08/21/05) Nina (05/01/06 CP) and Nichole (10/02/07 DS)
www.elliestumbo.blogspot.com

"For you created my inmost being, you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made, your works are wonderful, I know that full well." Psalm 139:13-14
God does not make mistakes

Momof6 · Posted: January 08 2009, 11:07 AM Post subject:

My thoughts and prayers are with you all. Hug that little man for me.

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~Christine~
Mom of 6
Brandon ADD/ADHD 19, Chelsea 16, Connor 14, Logan 9, Cody 6 & Austin 4 ( DS & Hirschsprungs pull through 12/8/08 ) diagnosis 10/28/10 Colonic Neuropathy, 12/16/11 dx with seizure disorder, neurogentic bladder...Monti Cath 11/9/12
http://www.caringbridge.org/visit/austinpaquin

I think I can, I think I can.
Climb the highest hills in all the land.
(If you think you can, you can.)
He could and he did !

I say CHEESE !

rachelann888 · Posted: January 17 2009, 12:39 PM Post subject:

Oh I am so glad you have answers and didn't give up! See parents know when something is different! Good for you for being sucha great advocate for your handsome son! Good luck with this new part of your journey... you are in my thoughts
rachel

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JTPBMom · Posted: January 29 2009, 3:03 PM Post subject:

I have been thinking of you and hope that the medication is working and that Ethan will be back to smiling and laughing soon.

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Sharon
-Mom to Jenna(1/03), Tanner(8/04), Parker(6/06) and Brennan(3/27/08*)

rachelann888 · Posted: February 09 2009, 10:29 PM Post subject:

Hey

how are you and Ethan doing? Are you guys figuring out the medications etc? Is he still sleepy?
I remember it was hard to get a "second diagnosis" on top of DS. When we found out Hayden had limited vision due to his optic nerve that was actually harder to take than Down syndrome.
So anyway I have been thinking about you! hope all is well
Rachel

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