DownSyn Forum

AliMama · Posted: January 20 2010, 12:12 AM Post subject: Eye muscle surgery

What have your experiences been with eye muscle surgery? If your child had the surgery, did they need to have it again? Did they have to wear glasses afterwards? Ali had both eyes done last July, and now it seems like the right one is turning in again slightly (that one was the worst before surgery). We have a follow-up appt scheduled for April, but I can't decide if I need to have it checked sooner.

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Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-2009

Annieo · Posted: January 20 2010, 5:31 AM Post subject:

John has had both eyes done and they're both still great. The doctor did say that sometimes they have to go back in again because the original adjustment wasn't enough. John wore glasses before surgery because he's farsighted and still wears them. His prescription isn't as strong anymore, but I don't think that has any thing to do with the surgery.

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Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul, and Alice
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Dorothy's Mom · Posted: January 20 2010, 10:52 AM Post subject:

I don't have any experience with the eye surgery...yet. Dorothy has strabismus and so far nothing is working to straighten it out. We tried patches but she just ripped them off as soon as we put them on. Now she is on an eye drop but that doesn't seem to be working either. She has an appt on Tuesday and I am hoping to find out one way or another what has to be done. Anyway, I'm keeping an eye on this thread to see what others have to say:)

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Keely
Mom to:
Audrey 9
Finnigan 6
Dorothy 3

MomtoAndrew · Posted: January 20 2010, 12:36 PM Post subject:

Andrew had surgery done to fix strabismus in both eyes when he had just turned 2. He'll be 5 in less than 2 weeks and is still good as gold. I was also warned of the possibility of a repeat surgery if the first one doesn't *stick*.......it's not uncommon for this to happen, but not terribly common either.

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Nicki, proud SAHM to:

Brady the Magnificent (1 Cool

Li'l Miss Ellie (12)
Mr. Mikey-Monkey-Man (9.5)
Sir Andrew (DS, 7)
Mr. Owen (chronological age 9.5mos, adjusted age 7mos)

burnsun · Posted: January 20 2010, 1:26 PM Post subject:

Personal experieince......mine. Had it done when 5 or 6....... left eye stuck forever...... have had the right one adjusted several times ........ considering doing it again anytime I can talk someone into it (it is fine with glasses on so I have been ignoring it for ten plus years....since I can't see my own hands w/o glasses.....but my headaches are back bad!)

I know we have been warned that Devon will / could need a second surgery to fix his when we do his this year! (we are really late..... but we will do them now he is participating with his glasses)

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Jane
mom to
Colin Miguel (11/19/00) DS & type 1 diabetes, ASD
Devon Richard(4/13/01) DS & Autism & Partial Complex, Seizures terology of Fallot
& Retinal detachment w partial blindness at this time
Melea Isabelle(2/13/02) DS
Adrian Elliott (7/04/03) ADD
Eliza Marisol (5/15/04) DS , ASD, pulmonary hypertension, ADHD, ODD, Autism Spectrum Disorder,
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy & Stero Typical Movement Disorder & AV Canal
Jordan Alexander(3/17/2007)ADHD
Emerson James (1/08/2009) 33 week preemie
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wife to the best & greatest guy Eric

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JMMH · Posted: January 20 2010, 11:55 PM Post subject:

Matthew had his done when he was about 18 months. He is now 32 months and so far he's still good. I'm hoping they stay that way! Sometimes every now and then I'll think I see it again, but I think it's because of his epicanthal folds. In pictures, the light always reflects evenly in his pupils and whenever we go in for check-ups, the opthamologist says he looks great.

Matthew doesn't wear glasses. We tried before the surgery with no luck and afterwards the doctor said he didn't need them. Hopefully that's still the case in April when we go back.

Good luck! If you're worried, it doesn't hurt to go in early.

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Melissa & Jason
Matthew (DS) and Zachary

momofrussell · Posted: January 21 2010, 6:25 PM Post subject:

Russell has had eye muscle surgery 4 or 5 times over the past 11 yrs. It's helped as much as it can. Russel has Amblyopia along with Strabismus which kinda looks the same but it's not, it's brain related instead of muscle related. So, muscle surgery doesn't help with the amblyopia.

A.

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Adrienne - mom to: Regan 17, Russell 12 DS, Autism, Visually Impaired, Reece 10.

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