DownSyn Forum

[HAnd]

but I am so excited... Kyle has gained a whole pound over the last two months!!! Putting him at 11 lbs 5 oz at his 6 month well visit which makes him plugging along steadily on the 10% of the DS growth charts so honestly he is TINY even in the DS community. Length wise he gained a half of an inch which officially drops him completely off of the both typical charts and down to the 25% in length on the DS chart. In other words he is the size of a typical 2-3 month old baby (and a small one at that). No wonder people are beginning to think I'm lying when they ask how old he is and I say 6 months and no he was not premature.

I saw a 2 week old baby yesterday and got to hold her. I was so excited to meet her because I thought Kyle would finally look big next to some baby. Boy was I wrong. He was a little bit longer and definately stretched out while she was still in her cute watermellon ball. But in no way did I say "Wow, Kyle looks so big next to her" We even compared their hands and guess what, they were the same size!

Okay, so here is my question, My sister thinks it is mean of me when strangers or semi-strangers ask me how old he is and I say he is 6 months and leave it at that even when they comment on how tiny he is or that they thought I'd say a matter of weeks old or ask if he was premature. I just respond with "Nope, he's just tiny" and move on with the incredulous looks on their faces. My point is the Down syndrome is NOT who he is or what he is about and I see no reason to tell the general public that constantly. I'm past the point where I used to cry everytime I said it. I also tell people we are friends or friendly with who make such a comment and somehow do not already know. I just honestly don't think it matters that he is so small and do not care what these people think when I give them no understandable explanation about he tinyness. Anybody else agree or disagree with me?

Also if there are any other 6 month old babies out there I'd love to hear how big your babies are too

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-Heidi wife of Kevin and Mom to Nikolai-12, MaryKate-11, Sara-4, and Kyle (T21)-9/27/09 is a big brother! To Eon- 9/2/12

[Momtoseven]

Congratulations on the weight gain! I think you're response is perfectly fine. As far as size - Mark has been off the "normally developing" chart since he was 4 months and he is just barely on the ds chart. I get the same looks when I tell people how old he is, but I also think the fact that he has ds is very obvious so I don't usually feel a need to explain. I get the "he is so cute" and nice smiles reactions more than "stares" and shocked looks, which is good. I just checked Mark's 6-month checkup results - they were actually done when he was 9 months because he was in the NICU for 3 months. His wieght at 9 mos was 14 lbs 5 oz. He is now 22 lbs at two years old. Hope that helps. It's good to hear from you again - I hope all is well.

_________________
Maureen - Mom to Daniel(24), Brandon(22), Jordan(16), Thomas(14), Carrie(10), Samuel(7) and Mark (4)
https://www.carepages.com/carepages/MarkEdwardC32708

[HAnd]

I don't think the ds is very obvious in Kyle yet, because he is still so small. I've only had one person not in a position where they work with small children with ds ask if he does have it. Hence the shocked looks. Most people just assume he was premature and I get the looks after I tell them he wasn't without adding another explanation... that's why my sister thinks I'm mean... I leave them hanging.

Maybe I'm just too close to him to see how small he actually is.

_________________
-Heidi wife of Kevin and Mom to Nikolai-12, MaryKate-11, Sara-4, and Kyle (T21)-9/27/09 is a big brother! To Eon- 9/2/12

[HAnd]

oh, and sorry about the accidental double posting, not quite sure how that happened. Stoopid computer is my explanation.

_________________
-Heidi wife of Kevin and Mom to Nikolai-12, MaryKate-11, Sara-4, and Kyle (T21)-9/27/09 is a big brother! To Eon- 9/2/12