DownSyn Forum

AliMama

We had our six month recheck with Ali's cardiologist today. Last appointment, I brought Baby Signing Time, and she happily watched the DVD and pretty much ignored the echocardiogram tech the whole time. Today we arrived armed with our videos, but their DVD player was BROKEN!! Shocked

It quickly became one long screamfest and Daddy had to come hold her down Sad

Luckily, there was some good news at the end of all this! The cardiologist said that the VSD left after her surgery had closed, and despite a little bit of residual leaking from the valves, everything looks great! Then he said those magic words: "I'll see you in a year" ! Very Happy

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Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-2009

Momof6 · Posted: September 02 2010, 6:11 AM Post subject:

Great news. So glad all is well. Sorry to hear her DVD was broke and that she wasn't happy, but a year....awesome.

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~Christine~
Mom of 6
Brandon ADD/ADHD 19, Chelsea 16, Connor 14, Logan 9, Cody 6 & Austin 4 ( DS & Hirschsprungs pull through 12/8/08 ) diagnosis 10/28/10 Colonic Neuropathy, 12/16/11 dx with seizure disorder, neurogentic bladder...Monti Cath 11/9/12
http://www.caringbridge.org/visit/austinpaquin

I think I can, I think I can.
Climb the highest hills in all the land.
(If you think you can, you can.)
He could and he did !

I say CHEESE !

dect · Posted: September 02 2010, 6:21 AM Post subject:

Ah - now that's a good thing to hear. I'm glad it was a good report. Smile

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Deryck
Dad to Xena 2 Aug 97, Lucas 28 Jun 99, Persephone 12 Jan 2004 (DS & AVSD repaired, artificial mitral valve)

Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind - Theodore Geisel (Dr Seuss)

http://www.picklesnet.co.uk

DanielsMommy · Posted: September 02 2010, 7:12 AM Post subject:

I'll take a screaming kid anyday if the news is 'see you in a year'. It's been 5 years since Daniel's surgery...and each year, I still get so anxious for every followup. Please pray we hear those words next week after our yearly visit!!

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Lisa - Mommy to Elayna 10-1-02 and Daniel (Ds) 6-7-05
Always have hope....Without rain, there can be no rainbows.

~Ben'smum~ · Posted: September 02 2010, 2:34 PM Post subject:

Thats great news! Makes the screaming worthwhile! Very Happy

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Karen- Mum to the world's cutest baby!! Very Happy

Ben

Tigger · Posted: September 02 2010, 6:18 PM Post subject:

That is awesome news!! Bummer about no dvd player but the good news was worth the struggle Very Happy

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Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Vicki89 · Posted: September 02 2010, 6:35 PM Post subject:

Thats GREAT news!!!

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Mommy to Kole 10/7/2009 (Down Syndrome, ASD & VSD)

Edensmama · Posted: September 03 2010, 9:24 PM Post subject:

Those words are music to a mama's ears! Thanks for sharing such wonderful news!

I hear ya about the DVD's. We ended up investing in a portable DVD player and it has been an absolute life-saver for us.

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Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem

Momtoseven · Posted: September 05 2010, 7:33 PM Post subject:

Maresa - So glad to hear the good news! I've been there with the screaming child through the echo - not fun at all and it's takes so long!! Uggh!! Worth it, though, to find out the vsd had closed!!

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Maureen - Mom to Daniel(24), Brandon(22), Jordan(16), Thomas(14), Carrie(10), Samuel(7) and Mark (4)
https://www.carepages.com/carepages/MarkEdwardC32708

AliMama · Posted: September 06 2010, 9:55 PM Post subject:

Edensmama wrote:

We ended up investing in a portable DVD player and it has been an absolute life-saver for us.

We just got one recently, too, and just LOVE it, but of course I left it home that day because I assumed we could use theirs! Confused

_________________
Maresa,
Mom to Alisa (10-29-2008) DS, complete AV canal repair on 3-6-2009

Ericanaysha · Posted: September 07 2010, 8:52 PM Post subject:

AWESOME news!

(and glad to know my baby isn't the only one who flips the whole time they are getting an echo done.)

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~Erica~
Mama to Natalie (7), Caleb (3), and Ephraim (16 months- MDS)