DownSyn Forum

Supernova

It looks like people are using a lot of alternative supplements (flax seed, fish oils,..etc) I doubt Nova's pediatrician would have any information for me about this, although it probably won't hurt to ask. But, how are you all determining what supplements to use and how much to use and when?

_________________

Supernova · Posted: February 17 2010, 9:29 PM Post subject:

or, what are some good books to read about T21 and nutrition?

_________________

elizasmom · Posted: February 24 2010, 9:18 PM Post subject:

Hi Dr. Leichtman is one of the guru's of TNI and you can check out his website:
http://www.lleichtman.org/tni.shtml

He used to be in VA and travel and do clinics (one in Danville) but he doesn't anymore and moved to NM. But he is quite active on the Yahoo Groups TNI group. Oakland and Berkeley would hae a bunch of nutritionists who are open to supplements. I would check with Children's Oakland to see if they have any alternative medicine people they work with. What we are using now is a mix of stuff from my own research and that of others as well. I use Dr. L's dosages for omega 3's , longvida ( a special tumeric) and gingko biloba. Then takes regular kids vitamins of C, the Bs, Zinc and D.

_________________
Liz - Mom to Walker (3/24/02), Eliza (Ds) (5/6/05), Alden Jane and Noah Henry (5/2/08 )

lilpayton · Posted: May 09 2010, 9:36 PM Post subject:

Liz, how is the longvida going? My girls are on Nutrivene, and Juice Plus/Omega 3 fills in the gaps for us. Oh, we use Ginkgo too, umm, sort of sporadically. LOL. We also supplement with Vitamin D, but Juice Plus gives them everything else from a whole food nutrition standpoint -- and it has been proven to be bioavailable, whereas synthetic vitamins are not.

_________________
Bethany, Mommy to Mason (7), Payton (6, DS) and Addison (5, DS)

Family blog:
http://www.ourperfectlyimperfectlife.com/

Adoption blog:
http://dreamingonanangel.blogspot.com/

Take control of your family's health with Juice Plus+
www.livelife-juiceplus.com

"No one told me that food is powerful. I thought food would just make you fat or skinny. I didn't know that fruits and vegetables could have saved his life. Why didn't someone love me enough to share Juice Plus+ with me?" ~Melissa Keyt, lost her husband to cancer at a young age and learned about Juice Plus+ at his funeral

lioralourie · Posted: February 15 2012, 9:40 PM Post subject:

One awesome book about Nutritional therapies and all sorts of issues biochemically with kids with DS is from Qadoshyah Fish, the brilliant older sister of a boy with DS.

It is $5 dollars E book (I like it cos I can search electronically for key terms, print it out and read on the sofa if I like)

Down Syndrome: What You CAN Do.

http://www.gotdownsyndrome.net/whatyoucandobook.html

Hard copy format also available for your school or therapist's library, etc. Once you read it you might be mad- and certainly wonder why these therapies are not mainstream and why our Doctors have no clue....You will be able to educate him/her!