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kctahoe Super Member
Joined: 18 Aug 2006
     
Last Visit: 25 May 2013 Posts: 1733 Location: Northern California
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Posted: June 16 2012, 12:16 AM Post subject: Blood Sugar Issues?
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Charlie is increasingly unable to eat high glycemic index foods without feeling totally wiped out, grump, and lethargic about 90 minutes later. Also increasingly, he is experiencing these symptoms after regular meals with proteins and fats. If we are not feeding him every 90 to 120 minutes or so, he totally crashes and we are sitting on the floor with him trying to coax him into eating a banana and some milk. Of course there are days that are not so bad... who knows why!
I am concerned that this is a trend that seems to be getting slowly worse. I am wondering if others have had similar situations, and if you can point me in a good direction with all this. I brought it up to his doctor at our last appointment and she was not concerned. But I am concerned!
Thanks!
Kim
_________________ Kim. Wife to Ray, Mommy to Charlie (DS), Calvin, and Miles.
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TracyR Senior Member
Joined: 20 Sep 2010
 
Last Visit: 18 Jun 2013 Posts: 401
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Posted: June 16 2012, 1:49 PM Post subject:
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I don't know about blood sugar issues in kids with DS. One of my other kids was having similair issues - getting very cranky, irritable, and teary after going for some time without food, and recovering within minutes of eating. I would suggest finding a glucometer to measure his blood sugar levels several times a day for a few days - when he wakes up, before meals, after meals, when he's experincing symptoms, before bed, etc. I think we were also supposed to do 2 hours before eating and 2 hours after. Generally speaking the levels should be between 70-120. Anything in the 50's is already real hypoglycemia. If it's that low, or lower, I'd freak out.  A good way to keep his bsl up is with complex carbs that take the body a while to digest and distriubtes the sugar slowly into the blood stream.
Please keep us updated and good luck!
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lespring Super Member
Joined: 26 Mar 2005
       
Last Visit: 18 Jun 2013 Posts: 12686 Location: Twin Cities metro area, MN
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Posted: June 16 2012, 7:59 PM Post subject:
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I know several kids who have been diagnosed as Pre-diabetic. Angela was when she was 8. She is no longer in that state. (thankfully) I would talk to an endocrinologist and start checking his blood sugars. For a time we were checking Angela like 10 times a day while we were trying to sort out what was going on.
_________________ ~Leah~
My mom's blog
http://gardenofeagan.blogspot.com/
And don't forget to visit MINE!
http://itsmylifemom.blogspot.com/
mom to Rob 27, Noah 26, Tyler 24, Bryon 24, Angela 17 (DS), Axel 12 (DS, adopted from Serbia 12/2012, AAI w/fusion) Asher 8 (DS adopted from Serbia 12/2011, AAI non-fusion), Abel (DS adopted from Serbia 4/2013)
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kctahoe Super Member
Joined: 18 Aug 2006
     
Last Visit: 25 May 2013 Posts: 1733 Location: Northern California
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Posted: June 18 2012, 3:37 PM Post subject:
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Thank you for the input. I will ask the doctor about endo referal, or at least a glucometer to check-out and record his numbers for a while. In preschool they naturally feed the kids every couple hours, so I was never worried, but with Kindergarten coming up, I sort of want to sort this out so I can add "must eat x-type of food every two hours at least". Also, it is weird to me that it is getting worse. I will pursue those good leads. Thanks.
_________________ Kim. Wife to Ray, Mommy to Charlie (DS), Calvin, and Miles.
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LinMac Super Member
Joined: 27 Oct 2005
      
Last Visit: 18 Jun 2013 Posts: 4686 Location: Dublin, Ireland
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Posted: June 19 2012, 6:15 AM Post subject:
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We have Robert checked for Diabetes ( sp) for the last few years. We basically get his blood check when doing the full blood count, CD and thorid checks.
So far he is fine!
I'm not sure of the % incidence in the Downs population but they do need to be checked for diabetes.
Could there be another reason for this behaviour? Thorid, CD, Sensory overload, vitamin levels not right, sleep issues?
Your doing the right thing getting it checked.
_________________ Linda & John
mom to Hannah Kate (Age 14 ), Robert (Aged 9 - DS)
First Communion Day
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