DownSyn Forum

We don't eat in Seattle. We just drink Starbucks coffee!!!!!!

Hi! My Kayla is just over a year now and is breastfeeding like there's no tomorrow! HA! She's also very tall (on the 96th percentile for typical kids!!) She does eat three times a day but when the ...

I just have agree with the moms that mentioned breast-fed babies don't poop as often as bottle fed babes. All three of my children would go 4 or 5 days when they were breast fed, maybe even more, i c ...

I had never read that. It's beautiful. Thanks for posting it.

Way to go Justin!!! I bet your heart just swelled as you watched him walk down to the bus by himself! Probably felt like one of those milestones, like kindergarten. That is great!! It's also great t ...

That is so great!!!!! Way to go, big guy!

Ok all you mothers who have been researching like mad, tell me why every organ and system in the body is not always affected by the extra chromosome? If there is an extra chromosome in every cell, wh ...

My husband and I are going to attend our first buddy walk in a about a week. We were all excited to meet other parents. Now, after reading some of these posts, I'm getting a little nervous. Our sit ...

Interestingly it says kids with DS average 10 months for standing and typical kids 11 months.

Welcome Tracy! Your montage made me teary. It was so sweet. Your little guy is adorable!!! I love that version of "Over the Rainbow". Who is it?

Love to hear positive stories!!! He is a very handsome young man. And sounds like he's well adjusted. Good job, MOM!

You guys are great. Thank you so much for the kind words. I feel better just knowing you're out there. And Sandy, yes, let's meet sometime!!!!! I'll PM you!

I've been going along for the first year of Kayla's life pretty happily. I try not to worry about the future too much. I've gotten used to people kind of staring and it hasn't bothered me....much. ...

He is so cute! Thanks for sharing your story. It's so encouraging. I love to hear stories of how "normal" our kids are, you know?

Congratulations!!!! I'm jealous too! I keep fantasizing about a companion for Kayla but just turned 40 Crying or Very sad

When I was about 4 months pregnant with my son (who is now a very healthy 19 years old), he was diagnosed with hydrocephalus. I was told very bluntly that there was a 99 percent chance he would be.. ...

Amy: I love the DS island idea. That cracked me up. Here's a weird thing that just went through my head. I was watching one of those documentaries about conception through birth and it followed 3 ...

I think we can all relate to your feelings of wanting to keep your precious baby in a bubble so the world won't hurt her. I don't have much experience with DS yet. But I can tell you a little scenari ...

Your story is beautiful. We celebrated Kayla's first birthday yesterday so I've been kind of re-living the day of her birth again. Your story made me smile through some tears. It amazes me how alon ...

Kayla had the shots last season. And yes, on top of all the other immunizations, I felt like she was a pin cushion for the first 6 months of her life or more. It broke my heart. But, my pediatricia ...

Geez. Sorry. I re-read the original question and realized I offered advice for exactly the opposite problem. Did I mention Kayla is teething and I haven't slept for like weeks????

Kayla is a year tomorrow. I think breastfeeding is her favorite thing to do in the world. If she had her way, she'd probably breastfeed till she's 10. I just offer her solids three times a day. Ev ...

Just turned 39

Kayla's first birthday is tomorrow so I have decide soon about the MMR vaccine. I'm just starting to get paranoid about autism. I know you all have had this debate before and I've read a lot of the ...

She can see her local doc, but not until Tuesday. (Monday is a holiday). I really don't want to make her sit in an ER for 3 or 4 hours.....
You would worry more about a prolonged low grade fever, r ...

Kayla's had a real low grade fever on and off for about 4 or 5 days now. (never over 99). She is teething but I'm reluctant to blame the fever on that for obvious reasons. She is still eating great ...

Had to respond to this one! This girl is so beautiful. She's a natural with the camera!!!!!

Keeping you and your family in our prayers. Stay strong! Things will get better

Like all of you, my husband and I sobbed through many parts of the story. It made me more determined to find friends for Kayla that share her special needs. The more I learn, the more I realize how ...

My son is now 19. He had a mitral valve replacement - due to congenital defect - at the age of 3. Since he was in heart failure at the time, his heart was so enlarged that they were able to put an ...

I finally had someone actually say something to me today for the first time, rather than just staring. A cashier at Babies R Us started out saying how cute Kayla was and then asked me if she had Down ...

I was told by either Kayla's pediatrician or her speech therapist or someone... that when babies nurse, they are actually pushing their tongues forward. So when they begin to eat solids, they have to ...

I started Kayla on cereal at 6 months. She didn't seem to mind it but didn't take an instant liking to it either. In fact, we had to do some pretty ridiculous antics to get her to smile and open her ...

Hi! Just wanted to share my experience with you for whatever it's worth. My little Kayla, thankfully, just had a small hole in her heart that they suspect will close up. However, I have a 19 year o ...

Hi Megan! I live about 30 miles north of Seattle (in Lynnwood). Auburn is probably about an hour away from where we live, so I can't answer any of your questions. My daughter with DS is only 10 mon ...

Welcome Nora and Jena! I am new to this forum too and I received such a warm welcome. Sounds like you're doing a fantastic job with Jena! Look forward to hearing more from you!

That was so beautiful. Thanks for posting it. I've told myself from the beginning that being blessed with Kayla was the ultimate compliment on my mothering skills. Someone upstairs must have a lot ...

This is such an interesting topic to me because after ten months of not talking to any other parents who had children with DS, I've been kind of "winging it". In the beginning, my husband a ...

Geez. This must be a hot item. Can I get in on this too?????

I too want to learn more about Nutrivene. I have read the information on their website but I'm curious to know if anyone has read any independent studies. I would be interested to read something tha ...