DownSyn Forum

I have heard that with DS babies, you should be concerned with the baby being underweight. And I've heard that with DS adults you should be concerned with them being overweight. With Kaitlyn I never ...

Hi Vonda,

Glad to see you back (although I've been gone for about a month). Congratulations on the birth of Halle!!!!

I'm glad to hear that Noah is doing well!!!!!

Hope to see you back ag ...

David & Judy,

Welcome to a wonderful website, I'm glad you found us!!!!! My name is Jennifer and I am mom to Danielle (9), Taylor (5) and Kaitlyn (2). Kaitlyn was born with DS. Like you, we ...

Kaitlyn is now 26 months old and I would like to know if we should start potty training now. I know with my other children, I started after they turned two, but I don't know if I should push that now ...

Hey Jen,

I also praise your efforts if you have the patience for home schooling. I, myself, would have to agree with Willie's Mom, my kids do way more at school than they would ever do at home for ...

I live in Texas and I remember when her EIP first came out to do the initial evaluation. They asked me if I had private insurance (I have an HMO). I said yes, and they asked me if I wanted to bill t ...

Well,I'm a little late in reporting, but Kaitlyn finally turned 2 years old on November 18. And today, December 4, is the 2 year anniversary of the day she came home from the hospital.

She has l ...

I never knew the percentages until I read Tom's post. My first and third pregnancies were miscarriages and I know my geneticist thinks that there is some kind of connection. If I had followed my pre ...

So do we ever get to find out what it means?

Another good book is "Hi, My Name is Ben". The social worker at the hospital where I had Kaitlyn gave me a copy. I still didn't tell my two others until Kaitlyn was almost a year old. I g ...

Jef,

I am actually at a loss for words as to what to say to you. I feel for you because I have been where you are, dealing with a diagnosis of DS. I think you need to look deep into his eyes, but ...

You have found a great support site. I will pray that Abby's surgery goes well and please keep us posted on her progress.

HiCourt, How about Thursday night at 10:00 pm CST or is that too late?

HiCourt,

How about Thursday night at 10:00 pm CST or is that too late?

At first, I thought it was just me. Glad to see everything's back in working order.

I am so excited!!!!!

We started working with Kaitlyn last week (finally!!!) on the sign for "more". Yesterday I asked her "more?" and she did the sign all by herself. Way to g ...

Way to go Emma!!!!

Now what are you going to show your mommy!?!?!?!

Way to go Courtney!!!!!

HiCourt, I am so excited for you and Courtney (as well as Nicolas.) Let us know how it goes.

I have to agree with all of the above posts. My husband and I went through a short (and I mean all of 2 minutes) of each of us blaming ourselves. But why? I wouldn't trade Kaitlyn or her "norm ...

Congratulations on the birth of Ryan and welcome to a wonderful website. I hope you will keep us posted as to Ryan's progress and if you have any questions, feel free to ask.

I'm glad to hear that Joey is doing well. Tell Jef and Shannon that they will be in my prayers. Please keep us posted on Joey's and Jef's progress.

Brenda,

Welcome to a wonderful website!!

I hope that Vinson is doing well. My daughter Kaitlyn is 22 months old and doing well. DS children bring a level of love to your life that you cannot c ...

Fiona,

I am so sorry to hear about your loss. I will keep you and your family in my prayers as you deal with this difficult situation.

I, like many others, didn't find out that Kaitlyn had DS until she was born. I must say that I think that was God's gift to me. After we found out she had DS, I almost wished I would have known befo ...

In looking back, I guess I never really set aside a specific time to work with Kaitlyn. I tried to incorporate it into the day in some way or another. I guess it would just depend on the child. If ...

I know how you feel about awkward. My daughter Kaitlyn was born with cataracts so she has worn glasses since she was 4 and 1/2 weeks old. I just finally got to the point that I didn't offer up the f ...

Cammy, thanks for posting the question. It is one that has been on my mind for quite a while. Sorry that I don't have any words of wisdom, but I think the two responses you got were great.

LisaJ ...

Fiona

I have to agree with MM. Kaitlyn was on a feeding tube for about the first week of her life. It took a little while to get her to adjust to the nipple, but eventually she did. I think it j ...

Kaitlyn actually started walking before she crawled on her hands and knees and she was 19 months when she started walking. Before that she did the rolling and the army crawl. Her PT told me that the ...

Heather,

I know it's hard, but I think the only way to get on with life is to accept the diagnosis. Once you do that, then you can focus on the child. Acceptance does not mean that you give up on ...

Heather,

I'm not sure when you should have their vision checked. While Kaitlyn was in the hospital, we noticed she wasn't "focusing". The doctors called in a pediatric opthamologist and ...

Laura,

I just love the chubby cheeks and the big beautiful eyes!! You've got a handsome man on your hands!!!

HiCourt

That modeling agency sure missed out on this little girl. She is absolutely adorable!!!! I just love the angel picture!

Samantha,

I think you are doing a great job!!!

I have to agree with MM about the pediatrician. If your pediatrician makes you uncomfortable in the way that he appears to care for your child, th ...

I also did not know about Kaitlyn's DS until a few hours after she was born. It was a huge shock; I had two other children and was only 28.

I definitely agree with the grieving part. I remembe ...

I think I would like to try the "Questions" forum.

Thanks!!!

Tom,

Can I moderate more than 1 forum???

Karen,

Don't you have the option of the public school system??? Here in Texas, when Kaitlyn turns 3 she will go to what they call the developmental center. I guess you would consider it a public ...

Any advice on how to keep glasses on a toddler?????

Kaitlyn is 20 months and has worn glasses since she was 4 1/2 weeks old, but since she has gotten older, she has become more "stubborn" ...

Anna,

I think I would have to agree with Hicourt. Although Kaitlyn is only 20 months, I have also done some serious thinking about her future (how can I not). I sometimes wonder if she would do b ...

Connie,

I can't say much about the dietician part. It was offered to me, but Kaitlyn was born at a healthy 8lbs 14oz and once we left the hospital, never had a problem gaining weight.

With rega ...