DownSyn Forum

OH man.. I read this and never had a chance to respond. This just breaks my heart that a doc was so unkind and SO assuming!!! I agree it sounds like another Ped Opth might be a better bet.

WE have ...

Wow... ok..where to begin....

In my advocacy training my teacher also always said, "don't ever sign an IEP"... kinda like a buyer's remorse kinda thing. But in reality, most of us don't g ...

If that was their answer "we are providing what the law is" so to speak, it sounds like they may have FAPE confused with her IDEA rights if you ask me. FAPE is the Free Appropriate part whic ...

One key thing also that your ST mentioned was Daniel's receptive language skills which, to me is paramount. We sometimes forget that we need the receptive lang skills also, not just expressive. So, if ...

Well, we are at the other end of the spectrum, way at the other end, but that's ok. We have always had a self contained class for Russell and through the years, we've kept having to actually place him ...

Our PAC president sent this out and I have seen it before, it's wonderful and I use alot of these helpful hints already with Russell's IEP's. She said I could pass it along and since there are some of ...

GOOD LUCK!!! And yes, it's a team decision and the team will make recommendations of "appropriate" placement but YOU do get part of this say so.. a VERY big part. And you say "for the n ...

Thanks guys!!! We had so much fun and yes, Reece had the BESTEST time at her birthday party!!! We had it at one of those Little Gym type places, it was called My Gym. Lots of kids and LOTS of fun!!! ...

Oh, let's see.. there are probably lots of relaxing things to do. Massages, rocking in a rocking chair, weighted vests, brushing...it's finding what relaxes the child, KWIM? You could probably do easy ...

Makes sense to me! Wink

And I think there are plenty of kids with and without DS that are like this, very active and seeking input. There are just some of us like that and some aren't. You might nev ...

It is actually common for breast fed babies to NOT poop daily. Wink

If you are concerned with constipation, keep an eye on how Ben acts when pooping, like if he is in pain, and the consistancy. If the p ...

YES.. I do believe chocolate IS a fruit/veggie!! NO? LMAO... DARN!

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Sounds like Amante can help you out too! Wink

Just let me know. Her neighbor is closer the my doc LOL.. It's up to you! I never knew about the 4 month supply but I am not up on this stuff too much. I am ...

OH that's GREAT news!!! I never posted again myself but we did finally get the screening done for Russell with his lab redo and his was neg for celiac's too!

SO YAHOO all the way around!!! Very Happy

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Do you need someone locally? Or does it matter? Our doc sells them if you need someone else to buy them from Wink

I can give you the number if you want it. He is in Southern IL. Just let me know.

I w ...

"UNTIL NEXT YEAR" LOL.. you sound like me with Russell's bdays... Wink

For some reason I have difficulty around his bdays.. lots of emotions and such... but I get through it. I have alot of go ...

CONGRATS! Your girls are very pretty!!!

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Oh that's great Courtney!! Glad you are all home!!!

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I remember having feelings of Russell be SO small for his size (even for DS charts) and barely walking, ect.. and wanting to keep him at home at 3, but for the most part I was thrilled for the transit ...

WOW... never heard of it quite like that. I agree she was persistant and I am glad you were just as persistant Wink

When Russell had EC we were in CA. Our PT did our evals and reports when needed. N ...

VERY NICE!!! And YAHOO for the money raised! That's neat you also got to meet Maureen!

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** A WAVES TO LACIA***

Hi there!! Glad you are here! And yes, this place IS fast paced.. I can't even keep up!!!!

Enjoy the ride!!!

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http://www.disabilitysolutions.org/news.htm

You may already have seen this but this is Disability Solutions link to their newsletters... Vol 3, issues 5 & 6 I think it is... if you scroll down ...

First off.. MANY MANY Hugs to you... after dealing with our dual DX for 4 yrs now, I still feel I have alot to learn about Russell and what to do. And that "what to do" is constantly changin ...

My oldest (typical) was DX'd with ADD (and ODD by the first doc we saw) and our first thing to try was the Adderal. We started with 5mgs and we kept having to up it a bit, more and more for a while to ...

Russell really only had a rough time for a couple days, didn't want to eat or drink, but after that he did ok. All kids respond differently. I know alot of parents that give their child pain meds (eit ...

Wow.. that's interesting Laura!!! Just goes to show that sometimes our kids do similiar things sometimes but for different reasons. I don't know if you remember or ever saw Russell do it when we were ...

Well, this is interesting to me. Russell does stim and he also does the stiffening thing... BUT.. I have never called his stiffening episodes "stimming" by any means. So, I wouldn't have eve ...

HOW NEAT!!!! He looks so jazzed to have gotten that award! Bet Mommy and Daddy were jazzed too! Very Happy

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STRIDOR GO AWAY!!!!

There .. did that help? Wink

Sending prayers for your little one!!!

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Glad you had a wonderful day!!!! My husband suffered from acid reflux bad for a few years... he was on Nexium for years (6 yrs or so). They finally told him he should have an endoscopy done to rule ou ...

I was going to say what Vicky said..... maybe the doc wrote DS on the reason FOR the PT (or whomever requested it originally) and there is no insurance code for DS. There are insurances codes for &quo; ...

Yes, sitting tight is a good idea! Give them a chance to observe her and if by chance they don't, then you can do a polite reminder letter of the events and a "how can we get this taken care of&q; ...

Did you put your request in writing? All requests for any IEP changes or evals really should be put in writing, this includes requests for aides/shadows. I would highly suggest you do this if you hav ...

I remember when Russell was young and a baby I wondered when he was going to smile. I think it took a long time. Also, for Russell, he was legally blind at the time so it was hard for him to see other ...

Oh Barbie that is very sweet! I am glad you were blessed to have them in front of you to witness such a sweet thing!!!

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Happy Birthday Stephanie! I hope you have a great day!

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Gosh, I have no advice Sad

One of Russell's markers was the thickening of the neck or nuchal fold... we did have the amnio and he has DS. You have had the amnio so it's ruled out chromosomal anomalies. ...

Oh Kristen.. I am sorry your family wasn't there for you. I just couldn't imagine! That just breaks my heart.

I am truly sorry Sad

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Well, if they look like they are "jiggling" back and forth, it sounds like Nystagmus. But a Ped Opth would better know if that is what it is. Russell has Nystagmus pretty bad but he has also ...