DownSyn Forum

Mama2Alex+Eian

for those who had ds suspected after birth how long did it take for the blood test to come back. it'll be 5 weeks tomorrow and they still aren't back. don't these people know how hard it is to wait.

kctahoe · Posted: November 07 2007, 7:46 PM Post subject:

Hello! and Welcome to Down Syn! Our results took 3 weeks to get back, but we were told it could take up to 6 weeks! The wait is awful! I'm sorry you are having to go through this right now. It was a relief to finally know what the results were. We felt like we did a lot of our grieving during those weeks of waiting, and when we received the diagnosis we felt like, "okay, he has Down Syndrome, lets get on with our life."

This is a great place to find information about Down Syndrome from the people who know BEST--Parents! Let us know how things turn out for your son. We have all been in your shoes at one point or another. It is really tough, but just know that almost all of us go on to find out that this is a truly beautiful life. Blessings!
--K

_________________
Kim. Wife to Ray, Mommy to Charlie 1/8/06 & Baby due 3/15/08
http://charlies47.blogspot.com/

EAS1971 · Posted: November 07 2007, 7:54 PM Post subject:

Hello and Welcome!

It took 1 week. And what a relief to finally just hear the news!!!!! The waiting was WAY harder than getting the results.

_________________
Mr. Oliver...who'll be 3 in September

And little brother Sebastian--14 months

shaunsmom · Posted: November 07 2007, 8:23 PM Post subject:

It took 1 week to get the results back. When I left the hospital with my son I pretty much knew in my heart but just needed the test results to confirm. I'm sorry you are having to wait so long. Hopefully your doctor will call you soon with the results.

_________________
Dawn
Mom to Anthony 5/19/86 Elizabeth 10/5/88 Shaun 12/06/06 (DS)

jaidenNlogansmommy · Posted: November 07 2007, 8:24 PM Post subject:

Our results took about 3-4 weeks I think but I blame that on the doctor we had the time. You can always call and keep checking on it.

Welcome to downsyn!!

_________________
Angela

Jaiden 6/25/04
Logan (DS) 4/17/06

elizasmom · Posted: November 07 2007, 8:27 PM Post subject:

Sorry about your wait! We did the FSH test (3 cells) and got that back within 48 hours, and then the full results took about 2 weeks. Keep us posted.

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Liz - Mom to Walker (3/24/02) and Eliza (Ds) (5/6/05)

Mama2Alex+Eian · Posted: November 07 2007, 8:52 PM Post subject:

Thanks waiting is so hard he's a little over a month old. i'm just ready to know for sure so we can get started down the road we need to for him.

All of ya'lls children are beautiful

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lespring · Posted: November 07 2007, 9:12 PM Post subject:

Hello and welcome. It's usually about 3 weeks, but if in the case of mosaic DS it can sometimes take longer, but not THAT much longer. I'd be making phone calls!

_________________
~Leah~

Did you vote for my mom today? http://www.blogforayear.com/profiles/leah

http://www.gardenofeagan.blogspot.com
mom to Noah 20, Tyler 18,Angela 11 (DS)

m'smom · Posted: November 07 2007, 9:18 PM Post subject:

When they took the test for our son, they told us it would take a few weeks. About a month later I called up the hospital where we had the blood drawn (as the doctor didn't have any results yet) and the hospital said that they have the results, and they HAD the results a while ago!!!! My husband went straight to the hospital to get the results, not waiting for the doctors office to get their act together.

Hope all will be well with you,

Debby

whaleritis · Posted: November 07 2007, 9:27 PM Post subject:

Hello and welcome,

I don't have an answer to your question since I found out about Brylee's ds when I was 3 1/2 months pregnant.

I just wanted to comment on how cute your boys are.

Aloha,
Myriam

_________________
Myriam & Chris
mommy & daddy to Brylee (5/29/06, DS) & Abigail (7/3/07)

kellyrimmer · Posted: November 07 2007, 9:58 PM Post subject:

It took 2 weeks to find out but noone called us I had to call them. They said they would call in 5 days and we waited 2 weeks and I was so mad when I called and got the results and asked why no one has called us. We never got a answer on it. The Geneticist(from Memphis) that I hated called us like a week later and I let her have it. She was so rude and that is when I decided to take Alexis to Vandy and I have never had that problem with anyone from Vandy. I just love them.

_________________
Kelly Rimmer
Mom to
Paige-11-12-92
Aaron-06-16-99(Adhd and Dyslexia)
08-19-05 (DS)
Kristen-11-1-2006
Baby #5 due 3-18-08

Helen Keller once said,
"Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, ambition inspired, and success achieved".

www.discoverytoyslink.com/kellystoybox
www.firstgiving.com/AlexisRimmer

DanielsMommy · Posted: November 07 2007, 10:07 PM Post subject:

We knew for sure before we left the hospital (we were there 5 days as I had a c section). However, due to his tone and his particular type of heart defect, my obgyn basically told me not to hold out any hope that the results would be negative. He said with his features and the heart.....he was fairly certain he had Ds....and he was right.

_________________

Elayna 10-1-02 and Daniel (Ds) 6-7-05
Always have hope....Without rain, there can be no rainbows.

mom2Anthony&8girls · Posted: November 07 2007, 11:54 PM Post subject:

10 days. We were shocked when we heard DS as we were looking for Noonans Syndrome.

_________________
Proud mom of Kiersten~17, Alexandria~15, Katrina~14, Ashley~11, Virginia~9, Corrin~7, Vanessa~6, Anthony~4 blessed with an extra chromosome, Rachel~8 months

naomid · Posted: November 08 2007, 3:33 AM Post subject:

Callum was born on Saturday and we had the results on the Tuesday or Wednesday via the FSH test, not sure how long it took to get the final confirmation as I don't think we ever asked! We knew it by the time we got the preliminary results.

The waiting is so hard, hope you get the results soon.

_________________
Naomi
Mum to Callum (DS) 3/03 and Kieran 8/04
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jacknbellasmama · Posted: November 08 2007, 9:32 AM Post subject:

2 weeks

_________________

Kristin
Wife to John
Mommy to Keeley 9/22/01, Bella 2/19/04, Jack Ryan 4/7/06 (DS) AVSD repaired 12/4/2006
www.clarklovenotes.blogspot.com
www.kristinclark.myarbonne.com

ElijahsMom · Posted: November 08 2007, 10:47 AM Post subject:

I can't help with that because I had an amnio at 23 weeks, but I hope that everything works out for you! The wait is awful, I can imagine!

_________________

PROUD Mommy to Elijah Thomas 2/1/2006
AVSD repaired 7/11/2006

Mama2Alex+Eian · Posted: November 08 2007, 11:45 AM Post subject:

thanks i just left a message at the drs office to call me back but the results are prolli not in yet. is the FSH test something i should ask about cuz the dr said monday that if the results weren't back soon she'd send us to have blood taken for another test.

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LinMac · Posted: November 08 2007, 12:46 PM Post subject:

10 DAYS

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Linda & John
mom to Hannah Kate (Age 9 ), Robert (Aged 3 - DS)

Grady's Mommy · Posted: November 08 2007, 1:18 PM Post subject:

Ours took less than a week. We were told it would take a few weeks, but they came back REALLY quickly.

_________________
~Kathy
Grady (DS 5/26/04)
Hailey 9/20/06

cathymomof2 · Posted: November 08 2007, 1:47 PM Post subject:

We had the results before we left the hospital - within a few days. The waiting was agonizing. Hang in there!

Your kids are beautiful!

Cathy

_________________
Mom to Ethan 3/2/02 and Lauren (DS) 6/5/04

http://ethanandlauren.blogspot.com/

Mama2Alex+Eian · Posted: November 08 2007, 2:43 PM Post subject:

could you that got results via the FSH test explain what it is and how they do that?

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EliasMom · Posted: November 09 2007, 8:31 AM Post subject:

2 weeks

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Ali (23) wife to Felipe since nov 2004, mom to Elias (Feb 21 2005)

perstephone · Posted: November 09 2007, 10:28 AM Post subject:

Hi!
We did amnio, too, and got our FISH (that's flourescent in situ hybridisation, it 's a rapid result test that only looks at the 13, 18, 21, and X/Y chromosomes) results next day, and the full report we got probably 7-10 days later. I don't remember the full report, really, because we had confirmation with the FISH.

I would assume they could do FISH testing with blood, although I admit, I don't really know. I am sorry you're hanging in limbo- the not knowing is certainly worse that 'getting on with it', I think.
best-
stephanie

cymorales · Posted: November 09 2007, 11:26 AM Post subject:

We got ours in a few days. He was born on a Sat. and by Wed of the next week we had the results. I knew though the day he was born, and tried not to get my hopes up. It was good to have confirmation though.

_________________
Carmen
"...be content with what you have, because God has said, Never will I leave you; Never will I forsake you." So we say with confidence, "The Lord is my helper; I will not be afraid..." Hebrews 13:5-6

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blessed with Esther · Posted: November 09 2007, 1:19 PM Post subject:

When my ped suggested that we test, Esther was two weeks old. I took her home and truly SAW her. I noticed so much that I had just not seen. The bent little fingers, the folded little ears, the simion crease, her arm and legs were a bit short.....I knew then.

The actually test took 10 days to come back.

_________________

Exodus 4:11
The LORD said to him, "Who gave man his mouth? Who makes him deaf or mute? Who gives him sight or makes him blind? Is it not I, the LORD ?

elizasmom · Posted: November 09 2007, 1:22 PM Post subject:

Yes, the FSH is the same blood test, and it looks at less cells (3 I think) but for us it gave us a pretty good idea what to expect from the other test as all of Eliza's 3 cells had T21.

Your son (both actually) are gorgeous!
Please keep us posted.

_________________
Liz - Mom to Walker (3/24/02) and Eliza (Ds) (5/6/05)

southernbelle · Posted: November 09 2007, 2:01 PM Post subject:

Gee Whiz.. It took like a week. What's up with your test? I'd would be calling SOMEONE to get results. lol I know it's hard.
amy

_________________

Mom to seven beautiful children...including Mr...I didn't make that mess....
(aka Austin - 05/18/04;TOF ♥ repair 05/25/04)
Austin's sibs...Kristin(22), Jessica(20),Rebecca(17),
Rachel(12), Hunter(7) and Sarah(10).

Mama2Alex+Eian · Posted: November 09 2007, 8:10 PM Post subject:

we got our results today he does have down syndrome i feel so much better knowing thanks so much for all your answers i look forward to sharing my journey with you all.

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jooniper · Posted: November 09 2007, 9:54 PM Post subject:

Your son is GORGEOUS!!! Congratulations on a beautiful little boy and welcome to the family!

_________________
Gillian
wife to Sergei and mom to Elaina (7), Zoya (5 1/2) and Polina (04/05/06 DS)

http://lintofpocket.wordpress.com/