My little darling Monica is undergoing the same type of surgery as the Blessed little Kennedy went through last July. (hope it is ok Renee to use your names).

She is getting c1 to c3 fused along with using a "Ransford loop" to attach and secure the vertebrea to the back bottom of her skull.
She will be in the halo cast for three months for fusion.

I want to thank little Kennedy and Renee for paving the road to this type of surgery by posting pictures and journaling your experience.
Because of your hard efforts, I feel going through this surgery with Monica will be easier because of the experience you had shared. Thank you!!

Please pray for safe and secure surgery and speedy and pain free
recovery.
Also pray that mom does not have anxiety attack in the hospital and panic. This whole thing is all in Gods hands. I humble myself before you Lord.

Her surgery is at 8am on Tuesday March 10th at Childrens hospital in Minneapolis by Dr Mahmoud Nagib.
Pray,,, and thank you !!

Thank you.

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I am so glad Monica is my daughter.

Oh my goodness! We will be praying for you. I had no idea that Kenn wasn't the only child 'designed' with this type of an instability! Princess Monica is unique as well! Keep us posted! {{{HUGS}}}

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Keep the Faith, Amy
Mom to Kristin (25) Jessica (23) Rebecca (19) Rachel (14) Sarah (13) Hunter (10) & Austin (5) DS

Absolutely ok! I just remembered I haven't answered your questions!!!! I am SO sorry. I think I gave you my number, PLEASE call me! I'd love to talk to you!

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~Renee~
Mommy to the Special K's:
Kassidy (11.4.99), Kameron (11.3.01), Kennedy (5.16.04)(Ds and AML and AAI), and Keeghan (5.1.07)

D is for Down syndrome
Kennedy's CarePage Site name: KennedyGarcia
Down syndrome awareness products!
Life with My Special Ks(My Blog)

I will say a prayer.

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Carol mom to Adam 6/17/96 ,Emily 8/7/98, Abigail (DS)8/16/04

{{{{{{HUGS}}}}}} and Prayers

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Jennifer, Momma to The Brookster 4 yrs old


www.specialneedsinmolalla.blogspot.com
www.foundalongthejourneythroughholland.blogspot.com

I hope the surgery went well. Praying for your family.

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Mommy to:
Holden 10
Hayden 6 (ds)
Jacie 5
Jordyn
And the Angels Danced the day you were born

praying that all went well for Monica - please update when you can, aj

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Momma to Janna Macie (CAVCanal/Mitral Valve Repair-T21-02/02/05)
Wife to Joseph (TOF & still thriving)


"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

"God has not always answered my prayers. If He had, I would have married the wrong man several times." Ruth Bell Graham

Praying all went well and she is doing ok.

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Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Praying all went well. Update when you can!

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Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

Praying for Monica! Ditto on the update when you can.

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Keep the Faith, Amy
Mom to Kristin (25) Jessica (23) Rebecca (19) Rachel (14) Sarah (13) Hunter (10) & Austin (5) DS

Praying here, too! I was thinking I'd come today for a visit but my youngest is home sick so it's not going to happen. I also realized I wouldn't know who to ask for other than Monica who just had neck stabilization surgery! PM me with your last name if you'd like me to try to stop by. We're always there Monday afternoons for PT so I should be there next Monday for sure.

Hope everything is going well. Please update when you get a chance.

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"There's a release in knowing the truth no matter how anguishing it is. You come finally to the irreducible thing, and there's nothing left to do but pick it up and hold it. Then, at least, you can enter the severe mercy of acceptance." Sue Monk Kidd

"Never doubt that a small group of thoughtful people can make a difference, in fact it is the only thing that ever has." Margaret Meade

Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul and Alice

www.caringbridge.org/visit/johnbremer

Hi,

Monica has a caringbridge webpage. you can get updates at...
caringbridge.org and she is under monicagrace

thanks for the prayers, and she could use some more to make it through today. She is not so good today.......
Thanks!

many blessings to all your familys,

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I am so glad Monica is my daughter.

http://caringbridge.org/visit/monicagrace

Poor Monica! Praying that she starts feeling better soon.

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Keep the Faith, Amy
Mom to Kristin (25) Jessica (23) Rebecca (19) Rachel (14) Sarah (13) Hunter (10) & Austin (5) DS

I will definitely be praying for Monica's quick recovery.

My daughter, Katie, also had a C1 -C3 fusion when she was three years old. She was in the halo brace for three months and while it was not a fun experience, it ended up not being as hard as we expected. I hope you will find it to be the same for you.

God bless,
Deane

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Deane, wife to Matt and Mom to Kate-the-Great (7 years old)



"A person's a person no matter how small." - Horton

Hi,

I am so glad to hear this news. It is so strange how no one really has any information to give me about what to do. They put the halo on and say,,, ok, clean pins twice a day, and dont get the lambs wool wet. Plus there is not real information about the actual surgery either. It took alot of digging and I found only one articule that was helpful and it was all medical talk, and really over my head.

What is Kate's mobility? What does she look like? Does she have scars? What was her position of sleeping she liked best. It is just the little questions.............
No one has told me how she gets up and off a couch or bed, or anything like this. Did you get any help when Kate got out of hospital?
Is this whole new adventure just a hit and miss kinda thing and you just learn as you go along?

thanks for your reply.

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I am so glad Monica is my daughter.

I'll e-mail you and we can do a Q and A session.

Deane

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Deane, wife to Matt and Mom to Kate-the-Great (7 years old)



"A person's a person no matter how small." - Horton