Earlier today I typed up a HUGE long post venting about John's GI issues. I decided about halfway through that I wouldn't post it but that the details and history I included would be good to have all written down. My plan was to copy and paste it to a Word document, but then my son logged me off the computer and I lost the whole thing. Ugh! So now I'm here with no detail or history to simply ask for your prayers that we can figure out what's causing John's diarrhea. I feel like the GI doctor we're seeing is on an ego trip. When he offered a very simple explanation that didn't seem to me to fit what we're dealing with, I told him I didn't buy it and now I feel like he's trying to prove me wrong. I am so tired of it all. It's been an ongoing issue for over a year. Poor Leah has been getting regular reports about John's blowouts (the best being an early morning adventure that involved two guinea pigs and took over an hour to clean up). She's also been playing detective with me trying to sort through the evidence and figure out what's going on. I finally made an appointment for next week at the Mayo Clinic. Both John's pediatrician and Leah recommended this months ago but I thought I'd give the local GI clinic another try. Now I'm more frustrated than ever. I've been on the verge of tears all day, which is silly, but the poop has gotten really bad and I'm tired of doctors who are cocky and confident and think I'm stupid.

Thanks! I'll let you know if we learn anything new.

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"There's a release in knowing the truth no matter how anguishing it is. You come finally to the irreducible thing, and there's nothing left to do but pick it up and hold it. Then, at least, you can enter the severe mercy of acceptance." Sue Monk Kidd

"Never doubt that a small group of thoughtful people can make a difference, in fact it is the only thing that ever has." Margaret Meade

Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul and Alice

www.caringbridge.org/visit/johnbremer

Praying you get some answers Ann.
Its so worrying when we don't know what is really going on!
Please keep us updated if you can.

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Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)


First day at school

Prayers for John

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Stacy, Mom to Tristin 12, Camille 8, Elijah 6, Caleb and Isaac 4

Prayers. And hugs.

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~Courtney
{Lucy, 3, Ds, AVSD repaired 1/08; Brodie, 1}

Friendship is born at that moment when one person says to another, "What! You too? I thought I was the only one!" -CS Lewis

Praying they are able to give you answers next week at John's appt.

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Rhonda

Taylor 17, Jordan 16, Dylan 7

We're praying for the cause of the problem to be known, and fixed. So sorrry you have to go through this, Ann.

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Shirley

I so ge tthe doctor and thinking I am stupid................ If I hadn't been so adamant with Miranda she would still be my perfect little "potato" in a ball...............no one not one dr thought she was having seizures.....months and months ............drs and specialists................ doing it again with Emerson's heart issues...............

everyone says there is no problem...... but he just slows and almosts gets to a stop .....they start cpr in NICU sooner than we have the alarm set now.............every one says there is nothing wrong..... it will just stop...... I am so tired of this!!!!! And none of this is a foul smelling as poo!!!!!!!!!!!!!!! (I get it about once a day but usually never from the same kid............. so I really do feel for you!

I hope Mayo finds you some answers!

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Jane
mom to
Colin Miguel (11/19/00) DS
Devon Richard(4/13/01) DS & Autism
Melea Isabelle(2/13/02) DS
Adrian Elliott (7/04/03)
Eliza Marisol (5/15/04) DS
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy
Jordan Alexander(3/17/2007)
Emerson James (1/08/2009) 33 week preemie


wife to the best & greatest guy Eric




http://princessgrumpy.blogspot.com/
read about the daily adventures of Princess grumpy and her special siblings and their daily adventures

http://thegrumpyfamily.blogspot.com/
the family blog of our unique & special family

Docs need to leave their egos at the door and LISTEN to the parents!!!! WE are the ones who KNOW our child. WE are the ones who LIVE with our child. WE are the ones with the insight and they need to come along beside us and work WITH us to figure out solutions to the problems! Prayers for you to get a listening ear!

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Marlene, mommy to my precious Aleena (1/30/04)

Praying along with you. It's so easy for the doctor--they aren't dealing with the feelings of your child or having to clean up the poop! Hope that they can help you at Mayo.

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Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

Please support the Down Syndrome Research and Treatment Foundation http://i139.photobucket.com/albums/q284/maryc_010/a13-1.jpg[/img]
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Praying for your darling boy.

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Aden's montage

Oh, Ann, I'm so sorry. I will be in prayer for you, John, and the doctors. This is hard, but you're strong and you're a great mom.

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Angela
Wife to Matthew
Mom to three wonderful sons:
Andrew James--3/24/06
Benjamin Matthew--4/24/08 DS--VSD & ASD repaired 10/3/08, intestinal obstruction repaired 1/13/09, hypospadias & ventral hernia repaired 8/21/09
Thomas Alexander--3/25/10

www.theamicks-angela.blogspot.com

Prayers for some answers. Glad that Leah is on the case too. You great momologists will crack this!

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Liz - Mom to Walker (3/24/02), Eliza (Ds) (5/6/05), Alden Jane and Noah Henry (5/2/08 )

My dad had the same Gi issues John has for the last 5 years of his life. He was totally miserable. I will pray for John and your family.

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www.1familytogether.blogspot.com

Hugs to you. I hope you will be able to find the answers at Mayo that will help John.

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Stephanie Hakes, mother to Abby born 5/6/07
Reed 9/21/09

Prayers being said.

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~Christine~
Mom of 6
Brandon ADD/ADHD 17, Chelsea 14, Connor 12, Logan 6, Cody 4 & Austin 1 ( DS & Hirschsprungs pull through 12/8/08 )
http://www.caringbridge.org/visit/austinpaquin

I'm sorry I dont have any advice for you but am certainly thinking about you

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Please visit Hannah's webpage read all about her journey
Hannah's Video

praying for the doctors to come up with the right answer! I don't trust doctors anymore, I ALWAYS get a second, and most a of the times, a third opinion. Always trust your instincts.

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Mami to Daniel (6/15/04)

"God doesn't give you the people you want, He gives you the people you NEED - To help you, to hurt you, to leave you, to love you and to make you into the person you were meant to be."

Praying you get a diagnosis and a solution. I hate the way doctors think it is ok to practice their pet theories on our kids - without any regard to what us mothers, who just happen to be with them 24/7, think. Grrrr.

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Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Ann- I've been meaning to ask you this..have you ever heard of or been told about a "stool transplant"?

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Alyssa- mommy to Macy (ds) 5/11/05 and Dallas 3/16/07




"Be kinder than necessary, for everyone you meet is fighting some kind of battle." Author Unknown