csunshinegirl Member
Joined: 27 Sep 2009
     
Last Visit: 14 Jul 2015 Posts: 74
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Posted: April 18 2014, 4:29 PM Post subject: LOTS of Facebook groups on this topic
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This forum looks REALLY quiet lately, there are LOTS of facebook groups that are talking about these things if you are interested.
Trisomy 21 Research
CMF Parent group
The Down syndrome action plan
Trisomy 21 Nutrition and Supplementation
Seriously, I know quite a few of you in this group are concerned about FB, but you are missing out on these AMAZING groups! So much is being discussed over there it is INSANE!
Not to take away from this group...but it's just been SO quiet here and it is CRAZY over on FB. 
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Rachel3 Senior Member
Joined: 03 May 2013
  
Last Visit: 04 Aug 2016 Posts: 608 Location: UK
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Posted: April 19 2014, 10:58 AM Post subject:
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Hi there,
Lots of people here are also on FB. And of course the wider internet offers lots of info and chance for discussion.
It is quiet here at the moment. But lots of people are calling it 'home'. Sometimes quiet is good. I feel that at the moment here we have a small community of people who know each other and support each other. This forum has a family feel to it. Of course we all get info on research etc from other places and share them as appropriate.
It's a close community here, yes, but for some FB might be too big and too public.
However, I also want to thank you for pointing out the discussion groups offered on FB. They sound great and it's good to know about them. The internet is so great for connecting people with similar interests and concerns.
Drop by more often!
_________________ Rachel
Mum to Thomas 05, Luke 07, Jacob DS 09. Married to Stephen.
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Rachel3 Senior Member
Joined: 03 May 2013
  
Last Visit: 04 Aug 2016 Posts: 608 Location: UK
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Posted: April 19 2014, 12:18 PM Post subject:
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Just wanted to add that there is a place for lively discussion and a place for collective wisdom. There can, or course, be an overlap between the two.
_________________ Rachel
Mum to Thomas 05, Luke 07, Jacob DS 09. Married to Stephen.
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