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Topic: Prayers for Ryan   
02-24-2006 12:30 PM
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mary c  
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Location: Westchester County, New York
Registered: Jan 2005
Posts: 688
Last visit: 03-24-2006

I lurk and occasionally post over at the NADS board. There is a little four year old boy named Ryan whose mother posts on that board who is in a bad way. In addition to DS, Ryan started suffering from seizures and is now in a coma on life support. They are trying him on the special diet (I forget what you call it), but it doesn't look too good. This family lost an older son earlier this year, and have a younger boy who has DS that they adopted after Ryan was born. Please pray for Ryan and his family and pass this on to anyone who could add their prayers.

If you want to see pictures of Ryan, or if you live in Oregon and could help them, you can check out his website, http://www.ryan.upwithdowns.org Thanks so much

[Edited by mary c on 02-27-2006 at 12:30 PM]
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

02-24-2006 12:51 PM
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ajbest  
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Location: NC
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we will pray for Ryan and his family. aj
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Momma to Janna (AVCanal-T21-02/02/05)
Wife to Joseph (TOF & still thriving)



"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

02-24-2006 03:12 PM
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helandy.cop  
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Location: Nottingham, UK
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Woh, that sounds awful. Will definitely be praying.
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Helen

Mum to Rachael Kinza (25/07/01), Matthew Isaac DS (14/06/03) and Hannah Cerys (14/06/05) - my gorgeous children!

02-24-2006 03:29 PM
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DanielsMommy  
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Location: Rhode Island
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Oh my, what tragic news. I will certainly be praying for their whole family.
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Lisa
Mommy to Elayna 10-1-02 and Daniel Ds 6-7-05
Always have hope....Without rain, there can be no rainbows.






02-24-2006 04:49 PM
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My Boys  
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Location: South Plainfield, NJ
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sending prayers.
__________________
Michele B.



Patrick (5-16-00)
Kyle (DS) (1-13-03)
Cameron (11-5-2005)

02-24-2006 05:56 PM
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Mary Beth  
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Location: Cleves, Ohio (Cincinnati)
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Praying for Ryan and his family. That is very sad.
Mary Beth

02-24-2006 08:23 PM
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Jenna  
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Location: Texas
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Poor little guy! That's so sad and scary. I will keep them all in my prayers.

The power of prayer is amazing, thank you for sharing and I will pass it on.
__________________

~Jenna
Proud mamma to these beauts!!!




DOB: Nate 7-26-03 ~&~ Lana 4-21-05

****


****

  "Just when you think you have learned what you need to know in life,
someone truly special comes into it and shows just how much more there is."

02-24-2006 10:46 PM
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hayden's mom  
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Location: Round Rock, Texas
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How sad. I am praying!!
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Holden 6
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And the Angels Danced the day you were born

02-25-2006 09:00 PM
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mary c  
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Location: Westchester County, New York
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I wanted to bump this up. Ryan is not doing well at all. He is in a coma and his eyes are no longer dialating when light is flashed in them. His parents are being given very little hope. Please continue to pray for him and his family.
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

02-26-2006 09:46 AM
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ajbest  
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we will pray hard this am for Ryan and his family. may God give him strength to fight and live for a long time. aj
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Momma to Janna (AVCanal-T21-02/02/05)
Wife to Joseph (TOF & still thriving)



"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

02-26-2006 02:15 PM
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huskies9798  
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Location: cincinnati ohio
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sending prayers to ryan & his family
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chris
mommy to brooke ds 8-30-04
my precious little angel

02-26-2006 02:49 PM
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marci  
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Location: lancaster, Pa
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We'll be praying for the Ryan

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Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

02-26-2006 06:04 PM
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waith  
Member

Location: Manchester, England
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Sending all our prayers for Ryan and his family.
Maxine, Geoff, Elliott and Dominic.







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Maxine UK. Mum to Elliott 12, Dominic 2 DS.

02-27-2006 12:22 PM
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** Hannah's mom ** UK  
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Location: West Midlands UK
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sending prayers for Tyan and his family

( the link doesn't work for me though )
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Jo mummy to Hannah (DS ) who was 3 in July 05 and Rebecca who was 2 in Jan 06


My beautiful girls

Baby 3 due April 10th 2006


Visit

Hannah's webpage and read all about her journey



02-27-2006 12:32 PM
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mary c  
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Jo, thanks for your prayers. I'm not sure why the site is not working. I must have the wrong address although I checked it twelve times.

As an update, as of Sunday, Ryan is not doing any better and the doctors don't know what to do. He is in a deep coma and is unresponsive to stimuli.
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Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

02-27-2006 12:38 PM
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marci  
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Location: lancaster, Pa
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So sorry to hear that. We'll keep praying.
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Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

03-01-2006 09:04 AM
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mary c  
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Location: Westchester County, New York
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Wanted to update you all. Ryan is doing slightly better and the doctors are going to try to bring him out of the medically induced coma. They are really afraid that he has suffered brain damage as a result of this series of seizures that precipitated his hospitalization (apparently had hundreds of them within a short period of time so that is why they put him in the coma in the first place). Please continue to pray for this little guy.
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

03-01-2006 09:28 AM
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ajbest  
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slightly better is better than nothing! we will continue to pray that God will see this little fellow through all of this. also praying for his family, aj
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Momma to Janna (AVCanal-T21-02/02/05)
Wife to Joseph (TOF & still thriving)



"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

03-01-2006 11:14 AM
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marci  
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Location: lancaster, Pa
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Hopefully there isn't much damage. We'll keep praying
__________________
Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

03-01-2006 02:46 PM
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waith  
Member

Location: Manchester, England
Registered: Apr 2004
Posts: 48
Last visit: 03-24-2006

Lots of prayers coming Ryans way.
Maxine Geoff, Elliott and Dominic
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Maxine UK. Mum to Elliott 12, Dominic 2 DS.

03-04-2006 09:38 PM
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mary c  
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Location: Westchester County, New York
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I wanted to update you on Ryan and ask that you continue to pray for this little boy. The doctors say his prognosis is very poor. He has had so many seizures that they think extensive brain damage has occurred and that he may never speak, recognize people, or have an awareness of his own self. Please pray for him and his family--they have been through a lot this year between Ryan and losing an older child. I appreciate it.
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

03-04-2006 09:46 PM
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klem  
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Location: Gadsden, AL
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Unhappy

This is just terrible. I'm praying for a miracle.
__________________
Kelley, Robby's wife
mom of Daulton, the Mayor (10-07-98) and Drake, my treasure on loan from God (4-19-04) DS

03-04-2006 09:52 PM
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Rasbora  
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Location: New Jersey
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Oh whow I'm so sad about Ryan. Sending lots of prayer to Ryan and to his family....
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A.J.:7 Down Syndrome
Caleb:4
Baby Boy Due 4/18/2006


03-04-2006 10:04 PM
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Jenna  
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Location: Texas
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Unhappy

Thank you for the update... My heart aches for him and this family. I will keep them in my thoughts and prayers.
__________________

~Jenna
Proud mamma to these beauts!!!




DOB: Nate 7-26-03 ~&~ Lana 4-21-05

****


****

  "Just when you think you have learned what you need to know in life,
someone truly special comes into it and shows just how much more there is."

03-04-2006 10:17 PM
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marci  
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Location: lancaster, Pa
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So sorry to hear this update. We will keep Ryan and his family in our prayers.
__________________
Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

03-04-2006 11:46 PM
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hayden's mom  
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Location: Round Rock, Texas
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This is just heartbreaking!! I am praying!!!
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Mommy to:
Holden 6
Hayden 2 (ds)
Jacie 1
And the Angels Danced the day you were born

03-07-2006 10:23 PM
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JenBrock'sMom  
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Location: Des Moines, Iowa
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Sending prayers to Ryan and his family.
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JenBrock'sMom & wife to Jay
Brock 7/28/05

03-08-2006 02:04 AM
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Tmjones  
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Location: Coeur D'Alene,Idaho
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miracles happen! my prayers are with this amazing family and of course with ryan! thank you for the updates...
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Tara
Mommy to...
Kyle 1/28/00
Krystin 12/08/02
Matthew 6/12/05


03-08-2006 02:59 AM
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momof3boys  
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Location: Valley Springs, CA
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Oh, this is so sad. I just prayed for them. Please keep us updated.
__________________
Dee Dee


Wife to Jason and Mom of 3 Boys
Austin 12/28/93
Logan 08/12/00
Colton 7/12/05 DS

03-08-2006 02:58 PM
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ajbest  
Super Member

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praying for a miracle in Ryan's life. and also for faith and strength for his family, a j
__________________
Momma to Janna (AVCanal-T21-02/02/05)
Wife to Joseph (TOF & still thriving)



"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

03-08-2006 03:40 PM
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Mary Beth  
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Praying for a miricle for Ryan.
Mary Beth

03-11-2006 09:45 AM
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mary c  
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Location: Westchester County, New York
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I just read an update on Ryan. They are starting to bring him out of sedation, and he has opened his eyes a few times and wiggled his hands and feet a little. The doctors don't know what to expect as far as brain damage, but his mom is starting to feel the slighest bit more hopeful. She thanks everyone for their prayers and asks that they keep praying.

Thank you from me for all your prayers. I have never met Ryan but I feel so touched by him and his story.
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

03-11-2006 10:04 AM
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ajbest  
Super Member

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YAY! you show 'em Ryan! we are still praying for you sweet boy and your family too. nothing is impossible with God, aj
__________________
Momma to Janna (AVCanal-T21-02/02/05)
Wife to Joseph (TOF & still thriving)



"Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

03-11-2006 12:52 PM
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huskies9798  
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Location: cincinnati ohio
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ryan stay strong! sending lots of prayers to you & your family
__________________
chris
mommy to brooke ds 8-30-04
my precious little angel

03-11-2006 07:28 PM
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LovelyKennedy  
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Location: Niagara Falls, NY
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I remember Ryan from the days I used to post on NADS. We are keeping him and his family in our thoughts and prayers. Please be sure to keep us updated or I will maybe visit the site as well.
__________________
Beth Mom to Cameron 2/26/2000, Kendall 6/25/2002 and My Lovely Kennedy 9/10/2003(DS)















03-12-2006 04:27 PM
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hayden's mom  
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Location: Round Rock, Texas
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Keep fighting Ryan!!! I am still praying!!
__________________
Mommy to:
Holden 6
Hayden 2 (ds)
Jacie 1
And the Angels Danced the day you were born

03-17-2006 01:49 PM
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mary c  
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Location: Westchester County, New York
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Last visit: 03-24-2006

Update on Ryan: He is doing better, has been put on a trach to breath and a g tube for nourishment. He is going to be transferred from the ICU to a step down unit, then a couple of weeks at a rehab hospital then home. They think he is going to make it, but they also thing he has had some significant injury, not sure how much. He is still being sedated, but is somewhat responsive to stimuli. The family would like people to continue to pray.
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

03-17-2006 02:08 PM
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Jenna  
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Location: Texas
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That's great he's doing better. I will keep him and his family in my prayers. Thanks so much for the update!
__________________

~Jenna
Proud mamma to these beauts!!!




DOB: Nate 7-26-03 ~&~ Lana 4-21-05

****


****

  "Just when you think you have learned what you need to know in life,
someone truly special comes into it and shows just how much more there is."

03-17-2006 02:46 PM
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marci  
Super Member

Location: lancaster, Pa
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Thanks for the update. Could you see if that link is right. I tried to get there but is never works for me.
We'll keep praying
__________________
Marci
Mom to Caleb, Cody, Evan, Ethan, Alex, Anna, Joni (ds, 4/03)

"My mother taught me very early that I could achieve any accomplishment I wanted to. The first was to walk without braces:"

Wilma Rudolf winner of three gold medals in running events at the 1960 summer Olympics

03-17-2006 04:51 PM
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mary c  
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Location: Westchester County, New York
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Thanks for the continued prayers. For a link try http://www.momtoaliandshae.tripod.com/ryan/. Hope that works.

Ok, that doesn't work now either, but when I go to the NADS site and click on that link on the posting it works--go figure! If you want to see the link, go to NADS general forum and look for a Ryan update posted by MomtoAliandPeanut (or something like that). You can then click on the link in the first posting.
__________________
Mary
Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

03-17-2006 05:23 PM
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Stephanie  
Super Member

Location: Yardley, PA
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I am so sorry I missed this. I will be praying for Ryan and his family here on out!
__________________
Proud Parents Stephanie and Joe
Awesome Big Brother Joey 3/8/97
Beautiful Daughter Megan 11/8/03
Precious Lil' Livi 7/6/05


03-18-2006 09:59 AM
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Renee Lacey's mom  
Senior Member

Location: Gloster, Louisiana
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Last visit: 03-24-2006

I am sorry that I missed this also.. Poor little guy and his family.. I will send prayers their way and please keep us updated!!!
__________________
Renee Parker


Haley


Kassidy


* An extra little Chromosome thats all it is, you see. Where all of you were born with 2, my angel was blessed with 3.*

03-18-2006 10:26 AM
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huskies9798  
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Location: cincinnati ohio
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I glad he is doing better sending more prayers
__________________
chris
mommy to brooke ds 8-30-04
my precious little angel

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