Would you like to help support this site?

DownSyn Forum > Introductions > New to Forum
Email This Page to a Friend!     Show a Printable Version	< Last Thread     Next Thread >

Author

Topic: New to Forum

03-21-2006 11:33 PM

Bonniejean   New Member Location: Rhode Island Registered: Mar 2006 Posts: 2 Last visit: 03-23-2006

Just wanted to say hi. I just found this site and it is wonderful. I wish I had found it sooner. My name is Bonnie and I have a daughter with DS, she is 21 months old. It was a big shock to us when she was born and then a bigger shock to find out she had a VSD. I had at least five ultrasounds including a level two and nobody found a heart problem. Go figure. My daughter was born at Women and Infants hospital on June 11, 2004. She is the joy of our live. The best baby and always happy. We live in Rhode Island and I was wondering if anyone else was from this area? I also was wondering if anyone else had surgery for a VSD at around two years old. Emily might have to go if her heart doesn't close on its own. I love reading your post. Bonnie Mom to Emily DS 21 months, and Joey 6

03-22-2006 04:55 AM

LinMac   Senior Member Location: Dublin, Ireland Registered: Oct 2005 Posts: 581 Last visit: 03-24-2006

Hi Bonnie A big welcome to you and Emily! My boy Robert is 23 months old. He's very close in age with your Emily I am afraid I have no advice to offer about Emily's heart problems, but I know there are many others here who have had heart surgery, and I am sure they'll give you the benefit of their experience. We live in Dublin, Ireland. I think that's a wee bit away from Rhode Island!! Delighted you introduced yourself. Looking forward to hearing more about Emily. __________________ Linda & John mom to Hannah Kate (Age 7), Robert (04/16/2004, DS)

03-22-2006 07:12 AM

lilpayton   Senior Member Location: Bristow, Virginia Registered: Jan 2006 Posts: 212 Last visit: 03-24-2006

Welcome to the site! I'm sure you'll love it here! I joined the boards right when my daughter was born and have learned so much from just reading random threads. Thanks Downsyn! My daughter is only 10 weeks old. She also has a VSD, but it is tiny and we are told that they expect it to close on its own. They said that it is so small that even if it doesn't close, she won't require surgery. So I can't help you there, but there are plenty of others on this board that have traveled down that road. How big is Emily's VSD? Can't wait to hear more about your family...and you must post pictures of your angel! PS...Danielsmommy is from Rhode Island. __________________ Bethany Mommy to Mason (1/13/04) and Payton (DS) (1/7/06) http://www.caringbridge.org/visit/paytonbalsis

03-22-2006 08:04 AM
lespring   Super Member Location: Twin Cities metro area, MN Registered: Mar 2005 Posts: 3743 Last visit: 03-22-2006	Hello and welcome to our family! Just a warning....do you have an addictive personality? If you do, you're in for trouble. LOL This site is highly addictive, and I've heard the FDA is going to put it in the same category as crack! I'm Leah, mom to Noah 18, Tyler 19, and Angela is 9 1/2 with DS. __________________ ~Leah~ mom to Noah 18, Tyler 17,Angela 9 (DS) downcues.com

03-22-2006 09:24 AM
amante   Senior Member Location: Registered: Nov 2001 Posts: 243 Last visit: 03-23-2006	Welcome, we are in Mass and there are a few other of us frozen Northerns here. Here's to Spring coming sometime! Amante __________________ Amante, mom to Caroline age 9, Margo age 7 and Peter age 3 (DS)born 2-11-02

03-22-2006 10:44 AM

Jenna   Senior Member Location: Texas Registered: Feb 2006 Posts: 587 Last visit: 03-24-2006

Hello Bonnie and Welcome!!! I'm Jenna, Mom to Nate 2 1/2 yrs old and Lana 10 1/2 mts old with ds. I'm glad you joined us. This forum is so uplifting, highly addictive, and the people are wonderful. You'll be able to get so much out of coming here, including friendships, advice, and understanding. Plus with Emily being older you can share your experience and advice with all of us with younger kids. When did they find that Emily had a VSD? Was it recently or at birth? I hope that it closes on it's own, but if it doesn't we'll be here for you with lots of thoughts and prayers. I look forward to getting to know you and your family. Can't wait to see pics. If you need instructions go to http://www.downsyn.com/forum/announcement.php?forumid=19 __________________ ~Jenna Proud mamma to these beauts!!! DOB: Nate 7-26-03 ~&~ Lana 4-21-05 **** ****   "Just when you think you have learned what you need to know in life, someone truly special comes into it and shows just how much more there is."

03-22-2006 11:23 AM

DanielsMommy   Super Member Location: Rhode Island Registered: Sep 2005 Posts: 1403 Last visit: 03-24-2006

Oh my God We are from RHODE ISLAND. You are the first person on this site I think I have met from RI!! Welcome!! You are going to love it here. I'll send you a pm with our local info. I have Daniel who is 9 months and Elayna who is 3 1/2. Which facility do you use for EI? We use Hasbro EI services. __________________ Lisa Mommy to Elayna 10-1-02 and Daniel Ds 6-7-05 Always have hope....Without rain, there can be no rainbows.

03-22-2006 11:37 AM
fixedyang   Senior Member Location: Orlando, FL Registered: Dec 2005 Posts: 166 Last visit: 03-24-2006	Welcome! __________________ Sherri & Chad married 12/16/00 Mom to Cooper (14), Hunter (12), Ethan (2), and our sweet baby girl Sadie born 10/3/05 (DS) "Listen to the MUSTN'TS, child Listen to the DON'TS Listen to the SHOULDN'TS the IMPOSSIBLES the WON'TS. LISTEN TO THE never haves Then listen close to me- ANYTHING can happen, child, ANYTHING can be" Shel Silverstein

03-22-2006 01:06 PM
sarah'smom   Super Member Location: Massachusetts Registered: Mar 2004 Posts: 1070 Last visit: 03-24-2006	Hi, Bonnie. Welcome! I am not from RI, but we are very close by in Massachusetts. I have Sarah(Ds) who will turn 3 in May, and Stephen who will be 6 in June. I will also PM you with more details. I look forward to hearing more about your wonderful kids! Again, welcome. You have found a wonderful place. __________________ Lisa, mom to Stephen(6/4/00) Sarah(DS 5/17/03) and baby #3 due (7/6/06)

03-22-2006 01:06 PM
elizasmom   Senior Member Location: Marin County, CA Registered: Jul 2005 Posts: 534 Last visit: 03-24-2006	Welcome! You are going to love it here. Your little Emily and I share the same birthday. Can't wait to see pictures and learn more about your family. __________________ Liz - Mom to Walker (3/24/02) and Eliza (Ds) (5/6/05)

03-22-2006 01:19 PM
naomid   Super Member Location: California Registered: Apr 2003 Posts: 2809 Last visit: 03-24-2006	Welcome As others have said this place is wonderful and very addictive I'm Naomi, mum to Callum who is 3 today and has DS and Kieran who is 18 months. We're in California. __________________ Naomi Mum to Callum (DS) 3/03 and Kieran 8/04 Read all about us

03-22-2006 01:34 PM
mommartin   Senior Member Location: California Registered: Jun 2005 Posts: 474 Last visit: 03-23-2006	Hi and welcome to the site. /big] Looking forward to hearing more about your family. __________________ Katie Jerry 1/02,Bethany 8/03(cp)Faith 5/05 (ds) Helping families achieve physical and financial wellness http://behomeforkids.themomteam.com

03-22-2006 04:43 PM
southernbelle   Super Moderator Location: Gray, GA USA Registered: Nov 2004 Posts: 4263 Last visit: 03-24-2006	Welcome to the family. We're tickled that you joined. Can't wait to see pics of the family. AMY __________________ "You are an unrepeatable Miracle. No one exactly like you was ever born or ever will be." Momma to Austin(DS) 05/18/04 Kristin, Jessica, Rebecca, Rachel, Sarah,Hunter www.caringbridge.org/ga/austinluke www.xanga.com/fireflysouth I LOVE my friends at downsyn.com! Here's a kiss.

03-22-2006 08:00 PM
ajbest   Super Member Location: NC Registered: Apr 2005 Posts: 2070 Last visit: 03-24-2006	welcome Bonnie and family! glad you found us. look forward to hearing more about Emily and seeing pictures of your angel. you've found a very supportive site, aj __________________ Momma to Janna (AVCanal-T21-02/02/05) Wife to Joseph (TOF & still thriving) "Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

03-22-2006 08:48 PM

Grandma to Olivia   Member Location: Registered: Sep 2004 Posts: 80 Last visit: 03-23-2006

Hello Bonnie! Welcome! I have a 2 year old granddaughter, named Olivia. She was our little surprise, we didn't know she had DS until right after she was born. She was born with two holes in her heart, but has not required any surgery. I need to find out what her heart condition is called, I have forgotten. She was on a monitor for quite some time because of sleep apnea, but no longer needs it. Right now she is doing just great! I think you're going to love it here! ______________ ~Cindy~

03-22-2006 09:43 PM

mary c   Senior Member Location: Westchester County, New York Registered: Jan 2005 Posts: 688 Last visit: 03-24-2006

Hi Bonnie, welcome to the site. Our daughter had a VSD, andASD at birth but the VSD closed early ( around 6 months) and the ASD had closed by the time we went in for our two year old check at the cardio's office at which time we planned to schedule surgery. If the doctors would let you wait it out, I definitely would--it saved our daughter from surgery. It may be that they can close it with a catheter rather than surgery as well. Hope you enjoy your time with us and you become a regular. __________________ Mary Mom to Libby 6/92, Alex 9/93, Anna (DS)12/12/03

03-22-2006 09:50 PM

Stephanie   Super Member Location: Yardley, PA Registered: Feb 2004 Posts: 2612 Last visit: 03-23-2006

LOL. As soon as I noticed you were from RI, I knew Lisa would be excited!!! YAY!!! I hope you guys can get together and meet. Welcome to the site!!! So glad you found us and I hope that you stick around and we get to some some pics of your beautiful girl!!! Jump right in! __________________ Proud Parents Stephanie and Joe Awesome Big Brother Joey 3/8/97 Beautiful Daughter Megan 11/8/03 Precious Lil' Livi 7/6/05

03-22-2006 09:59 PM

Bonniejean   New Member Location: Rhode Island Registered: Mar 2006 Posts: 2 Last visit: 03-23-2006

I would like to thank everyone for making me feel so very welcome. As soon as I fiqure out how to get the pict. on my computer and add them I will. Thanks for all the advice. If anyone else as any information on heart surgery please let me know. Also who they had for a doctor if you are local. We will be going to Boston if we need to. Which I hope we don't need to. Anyone in the area I would like to plan an outing together when the weather warms up. Please let me know if anyone is interested. I would love to meet your families. Thanks Again Bonnie

03-22-2006 10:24 PM

DanielsMommy   Super Member Location: Rhode Island Registered: Sep 2005 Posts: 1403 Last visit: 03-24-2006

Hi, I sent you a PM with our local info. We had heart surgery in Boston by Dr. John Myer. He did an amazing job on Daniel. He had compelete AV Canal defect. We go to the Pediatric Heart Center in the Coro building for our reg cardio appts. Daniel sees Dr. Rotondo. I am not sure if all surgerys are forwarded up to Boston...but from the very beginning we were told surgery would be up there. We stayed in Boston for a week and I can help you with arrangements if you do have end up having surgery. If you go to the main forum page and scroll down..you will see a section for Private Messages. So glad you are here!! Ask me anything about surgery...we took tons of pics too if you think they would be helpful to see. When will you know if she needs surgery? __________________ Lisa Mommy to Elayna 10-1-02 and Daniel Ds 6-7-05 Always have hope....Without rain, there can be no rainbows.

03-22-2006 10:26 PM

Stephanie   Super Member Location: Yardley, PA Registered: Feb 2004 Posts: 2612 Last visit: 03-23-2006

Bonnie, not sure if you would be interested but the 1st weekend in June we are doing a Sesame Place get together. Details are posted in Shoot the Breeze. I wish I had some info on doctors and VSD's but i am not familiar...but there are tons on here who do. So glad you are here! __________________ Proud Parents Stephanie and Joe Awesome Big Brother Joey 3/8/97 Beautiful Daughter Megan 11/8/03 Precious Lil' Livi 7/6/05

03-24-2006 12:01 AM
kellyrimmer   Senior Member Location: Atwood, TN Registered: Feb 2006 Posts: 184 Last visit: 03-23-2006	Hello and welcome!!! You will love this site. It is the best! __________________ Kelly Rimmer

All times are ET (US)

Forum Jump: Please select one: Category: Main-------------------- General Questions Introductions Brags PhotosCategory: Specialty Topics-------------------- Prayer Requests Five Plus Education Health Issues TNI and Piracetam 2006 NDSC ConventionCategory: General Discussions-------------------- Shoot the Breeze SiblingsCategory: About This Site-------------------- Forum Comments and Ideas Chat Room Scheduling Moderators Only Trash Can Temporary GeneralCategory: Posts from the Original Board-------------------- Old Board Posts - Part 1 Old Board Posts - Part 2 Old Board Posts - Part 3 Old Board Posts - Part 4 Old Board Posts - Part 5

< Last Thread     Next Thread >

Forum Rules: Who Can Read The Forum? Any registered user or guest. Who Can Post New Topics? Any registered user. Who Can Post Replies? Any registered user. Changes: Messages can be edited by their author if registered. Posts: HTML code is OFF. Smilies are ON. BB code is ON. [IMG] code is ON.

Admin Options: Open / Close Thread Move Thread Delete Thread Edit Thread

< Contact Us - Down Syndrome: For New Parents - Privacy Statement >

Copyright © 2006 Thomas and Michel Paul

downsyn.com does not endorse any advertisers seen here

Web www.downsyn.com