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DownSyn Forum > Questions > going for his follow up...have a question!
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Topic: going for his follow up...have a question!

03-23-2006 12:49 PM

ElijahsMom   Senior Member Location: Waverly, Ohio Registered: Nov 2005 Posts: 130 Last visit: 03-23-2006

I have a feeding question. Elijah is on NeoSure Advance. We have been giving him the powder kind and he seems to get a belly ache from it. He is fussy while eating, and he doesn't take very much (This has ALWAYS been the case with this formula.) at a time. While he was in the hospital, they gave him the ready to feed kind. He took it like a champ. He took more than ever at each feeding and ate more often (good thing?? Maybe!) He didn't seem to have a belly ache at all. Well, now that we're home I started giving him the powder kind (Thats what he gets through WIC) and the same thing started again. I mix it exactly like it says so I don't think it's a mixing issue. Is it possible that the powder just isn't right for him? I'm going to ask the dr what he thinks and hopefully he'll switch him if he thinks that's the case. The only problem is WIC won't pay for the ready to feed without a drs. order and everything else had been attempted first. SO---what do you guys think??! I'm getting ready to take him for his follow up and I need some insight! __________________ Elisha: Mommy to Elijah 2/1/06

03-23-2006 12:59 PM

Stephanie   Super Member Location: Yardley, PA Registered: Feb 2004 Posts: 2612 Last visit: 03-23-2006

Well, if WIC won't give it w/o a doctors order than I am sure there is a difference between the 2...otherwise they wouldn't offer it at all...doctors note or not. I would persist that he get the liquid and I am sure the doctor will give you that note. I mean I know from personal experience w/ Olivia (she had reflux) the pre-made formula made a huge difference. Let us know how it goes. __________________ Proud Parents Stephanie and Joe Awesome Big Brother Joey 3/8/97 Beautiful Daughter Megan 11/8/03 Precious Lil' Livi 7/6/05

03-23-2006 01:04 PM
Grady's Mommy   Senior Member Location: Ohio Registered: Jul 2004 Posts: 813 Last visit: 03-24-2006	He has medicaid right? Just ask the Dr. to prescribe his formula, you should be able to get it that way! We get Grady's pediasure free through medicaid. __________________ ~Kathy Grady (DS 5/26/04) Baby #2 due 9/23/06

03-23-2006 01:34 PM
ajbest   Super Member Location: NC Registered: Apr 2005 Posts: 2070 Last visit: 03-24-2006	Janna could never tolerate powder formula. there has to be a difference. i would definitely ask for the Drs. note. hope things go well for Elijah, aj __________________ Momma to Janna (AVCanal-T21-02/02/05) Wife to Joseph (TOF & still thriving) "Where there is charity and wisdom, there is neither fear nor ignorance." St. Francis of Assisi

03-23-2006 04:18 PM

ValerieM   Senior Member Location: Moravia, Iowa Registered: Aug 2005 Posts: 665 Last visit: 03-24-2006

I'm not trying to be a downer here, just going to share our experience. When Nicholas was tiny, his eating slowed down, actually became downright AWFUL! We tried different formulas (powder, ready made, etc) and different kinds of nipples, bottles, nothing worked. For him, it was basically because of his heart issue, and the eating didn't get better until after surgery. I hope this isn't the case for you. Hopefully you can get the ready made formula and it'll make all the difference in the world! Good luck! __________________ Valerie, mom to Derek, 16, and Nicholas (DS), 2 1/2

03-23-2006 04:36 PM

fee   New Member Location: tullyallen r.o.i Registered: Feb 2006 Posts: 15 Last visit: 03-23-2006

Your the parent you no best Hi elisha, Sean is nearly 15 months and we had that problem too, his doctor prescribed the ready made formula and as he aspirates I thicken it. He has reflux as well though not as bad as earlier. theres only one way to do it MUM knows best, INSIST. Good luck. Oh and maybe play around with the nipples on his bottles,maybe a bigger flow nipple... or ask the hospital ward for a sample bottle of what he drank ring them worth a try.... Fiona, Mam to Sean and Wife to Peter, Ireland

03-23-2006 04:41 PM
Madisons Mom   Senior Member Location: Philadelphia, PA Registered: Feb 2005 Posts: 441 Last visit: 03-24-2006	Madison too wouldn't take the powder either...we always used ready to feed. Actually our dr wanted her on the ready to feed from day one, but I got the powder from the hospital so I tried to use it. Let us know how you make out. __________________ Madisons Mom Carola Madison Theresia born 2-04-05

03-23-2006 06:53 PM
DanielsMommy   Super Member Location: Rhode Island Registered: Sep 2005 Posts: 1403 Last visit: 03-24-2006	Daniel is the same way. We actually use the liquid concentrate and it works just as well as the ready to feed. Your ped should be able to prescribe it and you should be able to get whatever you need from WIC. __________________ Lisa Mommy to Elayna 10-1-02 and Daniel Ds 6-7-05 Always have hope....Without rain, there can be no rainbows.

03-23-2006 06:56 PM
lilpayton   Senior Member Location: Bristow, Virginia Registered: Jan 2006 Posts: 213 Last visit: 03-24-2006	I have also heard that the mixture is not the same...not sure of the difference though. The powder is harder to tolerate...maybe it ends up being more grainy? __________________ Bethany Mommy to Mason (1/13/04) and Payton (DS) (1/7/06) http://www.caringbridge.org/visit/paytonbalsis

03-23-2006 10:13 PM

ElijahsMom   Senior Member Location: Waverly, Ohio Registered: Nov 2005 Posts: 130 Last visit: 03-23-2006

Well that went just great. So, we went to the dr. for his follow up. He was supposed to get his synagis shot (RSV vaccine) but the dr. said that he isn't "well enough" to have it. Mind you, we waited an hour and a half JUST FOR A ROOM! After waiting in the waiting room FULL of SICKIES, I asked the receptionist if she could take us to the back somewhere away from all the sick kids. I thought I was going to have to bribe her! She made it out to be a big deal...like we shouldn't do what we can to keep him from being exposed to sicklings. He started feeling worse and finally when the dr came in he asked me if he was always so fussy. I said "no, only when he has to go without eating waiting on his dr." !!!! I was SO mad. That poor baby just can't catch a break. I told him about the formula and after almost pleading, he wrote a script for it. I thought I was going to have to twist his leg or something. It was like I had to convence him that he couldn't tolerate it. I mean geez, we want to make this baby's life at least pleasant, right??! So, I got some of the ready to feed, and he has taken almost the whole bottle (32 oz) already! I swear, there HAS to be a difference. Well, I called WIC to tell her that I had a script and I would need his April vouchers to be for the RTF. In the snottiest tone she was like, "Well, we DON'T give vouchers for RTF. You have to get the powder." I told her, "I have a script for RTF Neosure and I WILL need it for April. If you have a problem with that, you'll have to talk to his dr." And that was that. She said, "Yes ma'am, Your vouchers for April will be for the RTF." I hate it that I have to get rude with some of these idiots, but GEEZ! So, now that I got that out of the way, he has to go back next week for his shot if he's better. __________________ Elisha: Mommy to Elijah 2/1/06

03-23-2006 10:34 PM

mommartin   Senior Member Location: California Registered: Jun 2005 Posts: 475 Last visit: 03-23-2006

So glad you got the script for the liquid. I think it is different. I haven't ever used formula but I hate chocolate milk with the powder but I looooveee it with the syrup. I think it has to be because of the consistancy. Anyway glad he is doing better. __________________ Katie Jerry 1/02,Bethany 8/03(cp)Faith 5/05 (ds) Helping families achieve physical and financial wellness http://behomeforkids.themomteam.com

03-23-2006 10:52 PM
Carson's Mom   Senior Member Location: Bossier City, LA Registered: Dec 2005 Posts: 218 Last visit: 03-24-2006	I don't know what the difference is, but, the ready to feed is thicker and stays down better. All three of my children have had reflux and been on Nutramagin. Unfortunately the can is $8.50 a day. I sure wish they could have used the powder - I would be rich if I had all of that money back. __________________ Kayla, Callan(5), Kenna (3), Carson 5 1/2 months

03-24-2006 01:05 AM
keri   Member Location: MN Registered: Jan 2006 Posts: 69 Last visit: 03-23-2006	The RTF is more sweet. I also noticed that Kait had less constipation with the RTF. __________________ Keri Mom to: Sydney 9-25-01 Jack 2-10-03 Kaitlyn DS 7-30-05 Brave Heart 2-24-06

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