DownSyn Forum

DanielsMommy · Posted: June 08 2009, 6:47 PM Post subject: Prayers for my Mom UPDATED

She went to FL a few weeks ago with her sisters and had a great time. Shortly after returning...she started not feeling well. Mostly tired and some digestion issues. Then she started to break out in a rash. She thought it was a heat rash, allergic reaction to something. But it's gotten worse. The marks went from small red spots to HUGE purple welts. The backs of her thighs are almost all purple. Her regualr doctor originally sent her to a dermotologist and she had her appointment today. They took a biopsy (scary huh?) and gave her a steriod cream to put on it.

Coincidentially, my FIL had the exact same rash a few weeks ago....his doc prescribed the steriod cream and his has gone away.

My father said this could be something serious..but they don't know what (or they aren't telling me what they know..parents still do that with their 40 year old children). He said it is something vascular..and could effect her heart?? She has no known heart issues at this point at all. But if vessels are bursting in your body...that can't be good.

It doesn't hurt her...but it looks AWFUL...and I mean AWFUL.

Of course googling rashes points you to awful things...mainly the L word. If you could pray, I would really appreciate it.

Thank you everyone..and I'll keep you posted.

_________________

Lisa - Mommy to Elayna 10-1-02 and Daniel (Ds) 6-7-05
Always have hope....Without rain, there can be no rainbows.

Mary Beth · Posted: June 08 2009, 7:28 PM Post subject:

Lisa that does sound scary. Prating that it isn't anything serious.
Mary Beth

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Mom to Rick 30, Stephanie (27), Elizabeth (25), Robby(22), Samuel (12 DS, TOF), Shane ( 11), Katarina (7 DS, AV Canal Defect)

af_wife2005 · Posted: June 08 2009, 9:51 PM Post subject:

Praying Lisa....Keep us posted

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Edensmama · Posted: June 08 2009, 10:29 PM Post subject:

Prayers for your mom!

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Nathalie
Mom to Eden (DS) 4-13-08
Wife to Luciano (the best daddy in the world) since 10-8-2005
www.caringbridge.org/visit/edensalem

Stephanie · Posted: June 08 2009, 10:58 PM Post subject:

Lisa, I am saying prayers for your mom, how very scary.

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Joey 3/8/97
Megan, DS 11/8/03
Olivia 7/6/05

Tigger · Posted: June 09 2009, 1:36 AM Post subject:

Sounds extremely scary. Praying for her.

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Karyn
Mum to Nikki (Jul 89), Stefanie (Sep 96), Joel [June 98] and Talitha (DS) (Nov 05) AVSD/PDA repaired 23 March 06

"I will praise You, for I am fearfully and wonderfully made; Marvelous are Your works, and that my soul knows very well." Psalm 139:14

Annieo · Posted: June 09 2009, 8:25 AM Post subject:

Lisa,

Is it a rash or bruising? This sounds a lot like what my mom has been dealing with for a couple years (and is currently having trouble with again). My mom has something called ITP. Her platelet count drops for no known reason, and sometimes it drops dangerously low. She was treated successfully when it was originally diagnosed (treated with a combination of steroids and IVIG) and went for over a year with no problems. This winter (while she was in Florida, as a matter of fact!) she noticed bruising again and now she's right back where she started. Very frustrating. They did a bone marrow biopsy back when she was first diagnosed to rule out leukemia. That was scary!

In re-reading your post I see that she went to a dermatologist. I can't believe a dermatologist would confuse bruising with a rash, so it probably isn't the same thing at all. I'll pray for your mom that they figure out what's going on and that it's nothing serious.

_________________

"There's a release in knowing the truth no matter how anguishing it is. You come finally to the irreducible thing, and there's nothing left to do but pick it up and hold it. Then, at least, you can enter the severe mercy of acceptance." Sue Monk Kidd

"Never doubt that a small group of thoughtful people can make a difference, in fact it is the only thing that ever has." Margaret Meade

Ann, married to Tim, mom to Sally, Mark, Jane, John (12/02, DS), Paul and Alice

www.caringbridge.org/visit/johnbremer

LinMac · Posted: June 10 2009, 7:39 AM Post subject:

Praying she makes a speedy recovery Lisa. Sounds a bit scary......never heard of anything like that before.

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Linda & John
mom to Hannah Kate (Age 12 ), Robert (Aged 6 - DS)

First day at school

Renee Lacey's mom · Posted: June 10 2009, 9:29 AM Post subject:

Sending prayers~~

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Renee~~ mom to Haley 10,Kassidy 8, & Lacey(DS) 4 & wife to Chris!!

* An extra little Chromosome thats all it is, you see. Where all of you were born with 2, my angel was blessed with 3.*

JanetG · Posted: June 10 2009, 10:01 AM Post subject:

Sounds very scary... prayers here too...

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Janet (44) and Jeff (44)
Joshua (angel) '85
Sarah-age 22
Jaret-age 5
Jacey-born 2/22/08 (dx w/ Ds 9/10/07)

shea01 · Posted: June 11 2009, 10:50 AM Post subject:

I will be praying for your family.

My girl Sam · Posted: June 11 2009, 1:22 PM Post subject:

We'll be praying.

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Angie - Mom to
Samantha 8yrs (DS)
Gerry 7yrs
Abera 6yrs
Brandon 5yrs

DanielsMommy · Posted: June 16 2009, 11:28 AM Post subject:

Just a quick update....all tests have come back negative. So, while she still has a few more left to do...everything points to vascultis. They have finally prescribed a steriod (prednisone) and hopefully the rash will go away. Thank you all for the prayers!!

_________________

Lisa - Mommy to Elayna 10-1-02 and Daniel (Ds) 6-7-05
Always have hope....Without rain, there can be no rainbows.