DownSyn Forum

pmjc48 · Posted: September 09 2010, 9:32 AM Post subject: Adult children............

Would it be possible to have a forum for those of us with adult children? Our worries, concerns/ proud moments etc can be so different from those of parents with small children.

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Dennis' mom · Posted: September 09 2010, 5:14 PM Post subject: Adult Children

Yes I have just joined and that is what I am looking for too,our son is 24 and having over the top OCD, not sleeping,aggressive and pretty much does not act appropriately around people.So I am looking for any one for to see if this is like any one else,s situation

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Dennis' mom

Sunshine's_Mama · Posted: September 09 2010, 6:31 PM Post subject:

I think that's a wonderful idea! I'm a long way from having adult children but I would love to be able to "peek in" and see what life is like once our kids get older. I'm sure you guys need a place to chat about older kid stuff too, rather than just the little people stuff.

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kittycat3376 · Posted: September 09 2010, 6:37 PM Post subject:

Sunshine's_Mama wrote:

I think that's a wonderful idea! I'm a long way from having adult children but I would love to be able to "peek in" and see what life is like once our kids get older. I'm sure you guys need a place to chat about older kid stuff too, rather than just the little people stuff.

Ditto!

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lespring · Posted: September 10 2010, 8:28 AM Post subject:

I think there are only a couple of you here!

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mom2alex · Posted: September 10 2010, 8:55 AM Post subject:

There may only look like a couple because we don't post often. The topics aren't always relevant to us. I know I read more than I post on this forum.

I think this is a great idea.

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Nicol - Mom to Alex -18

Dennis' mom · Posted: September 10 2010, 10:21 AM Post subject:

Hi again,Last night I saw that some of you are interested in adults and thats great!So i wrote this big long post,about whats going on with our son,over the top OCD,awful behavior,stereotypic movement disorder,aggressive when he doesn't get his way etc.anyway I think I deleated it instead of posting it.So I'm anxious to see if and what anyone has to say on any of these topics-or any topics you would like to talk about,vent,ask questions, I am hoping to find someone out there with some simular things going on .One question I have is what is simming I saw that in alot of posts and not sure what it is.Also,wondering about anyone has kids taking antipsychotics and if they are helping.Dennis takes 20mg.Abilify aday,300 Luvox and melotonin(forgot to say he fights go to sleep)He has been on others,but he just doesn't seem to be improving except he is sleeping throu gh the night again-most nights.Hope this gets something started.Laura(Dennis' mom)

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Dennis' mom

Tom · Posted: September 10 2010, 11:25 AM Post subject:

What age do you consider adult?

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Tom

Dad to Beth (17) and Mikey (13 - Ds and PDD-NOS)
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Tom · Posted: September 10 2010, 11:40 AM Post subject:

Stimming is a repetitive behaviour such as shaking a towel or spinning a plate done for long periods of time. Stimming is shorthand for stimulation. The belief is that stimming stimulates some kind of sensory input in the brain. It is more commonly seen in children with PDD.

Mikey is a towel shaker.

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Tom

Dad to Beth (17) and Mikey (13 - Ds and PDD-NOS)
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mom2alex · Posted: September 10 2010, 11:40 AM Post subject:

18+ I would think

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Nicol - Mom to Alex -18

Dennis' mom · Posted: September 10 2010, 12:02 PM Post subject: Adult Children

I think any age after 15 or so ,not that they are all grown up at that age, but I think that sounds good.I hate to put an age limit though so how about if anyone has some one that they would like to talk about that isn't under 12. I am in a home where my other 8 children have moved out and on with their lives and Dennis is still here with us-he is 24.

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Dennis' mom

burnsun · Posted: September 10 2010, 12:11 PM Post subject:

Our district starts adult planning at age 15 cause of the years of wait lists to get housing and such...... I would say 16 and up.....

not to be a bearer of bad news....... but ..... I would be thinking that you may need to get your son evaluated for the early onset (though yesterday I was told mid 20 is regular time for adults with ds to get alzheimers........ )

they have recently decided either COlin (MY NINE YO) either has diabetes 1 & 2 at same time and / or he also has the type where his brain is not making and/o utilizing the insulin (new theory is this is what causes alzheimers) and this is why his behavior change........ Rolling Eyes

I have learned the following over the last few months. COlin's behaviors are horrid and his patience is non existent when his blood sugar is over 160 and if it is over 190 he becomes delusional (or so I think) cause he starts to hit me too !

So my other question is have they checked his blood sugars lately too?

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Eliza Marisol (5/15/04) DS
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy
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Dennis' mom · Posted: September 10 2010, 12:29 PM Post subject: adult children

Yes I have been thinking about Alzh. but waiting to get a date for an mri done the phycharist keeps stalling-he will need to be sediated and she is concerned for his safety.he has been put to sleep before and I think this is necessary,if nothing else to rule it out for us.We go back at the end of this month to see her.We are also concerned about diabetes. Dennis' dad has been insulin dependant for 28yrs.So was his mom& dad& both grandparents and my dad too.We had it checked about 2 months ago,I would have dad check it here but he FLIPS out if he and dad touch,Have no idea why????That makes me again say there is something seriously wrong!!!If they touch or brush up he then stalks his dad till he touches him back.He will also do it to people in public if they happen to accidently bump into him.Anyway the only thing that I dont see for the Alzhimers is his memory is excellent,but everything else is looking like it to me.I am so worried and scared to death.Laura-Dennis mom

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Dennis' mom

burnsun · Posted: September 10 2010, 1:42 PM Post subject:

personal experience with altheimers and my grandparents in law..... is it starts with a huge personality change.....long before the memory loss starts......

good luck!

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Jane
mom to
Colin Miguel (11/19/00) DS
Devon Richard(4/13/01) DS & Autism
Melea Isabelle(2/13/02) DS
Adrian Elliott (7/04/03)
Eliza Marisol (5/15/04) DS
Miranda Olivia (2/1/05) DS & Partial Complex Seisure Disorder & iratractable epilepsy
Jordan Alexander(3/17/2007)
Emerson James (1/08/2009) 33 week preemie

wife to the best & greatest guy Eric

http://princessgrumpy.blogspot.com/
read about the daily adventures of Princess grumpy and her special siblings and their daily adventures

http://thegrumpyfamily.blogspot.com/
the family blog of our unique & special family

Dennis' mom · Posted: September 10 2010, 2:09 PM Post subject: Adult children

So about the simming,would waving at someone and doing it for like 5 minutes really, really fast and making noises that sound like vodo at a time be considered simming?We had a genetics testing done last month and it showed no to the duel diagonisis thing,but there is a likeness right?

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Dennis' mom

TheBradyBunch · Posted: September 10 2010, 2:15 PM Post subject:

I'm thinking yes. Is he actually looking at the person or through the person? Sometimes noah looks like he's looking at me but he's not really, and he'll rock back and forth from side to side in his crib and laughs at nothing. I know it's not the same thing, but as far as I know behaviours that seem to be repeated and innappropriate are usually stimming.

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TheBradyBunch · Posted: September 10 2010, 2:16 PM Post subject:

Oh and yes I think that an "adult child" forum would be a great idea!

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Mom to: Nicholas (May/02), Nathan (April/04), Charlene (June/06), Noah (DS) (May/07), Jesse Lynn (July/08 ), Tessa (Apr/10)

Dennis' mom · Posted: September 10 2010, 2:28 PM Post subject: adult children

I would say looking right at him,I did think at one time if we ignored it it would go away.When that didnt help, I would say please stop,that made it worse when dad said it, it was even worse.I told myself you arent going to stop it,I am still at it though.Whenever possible I try to change his mind that works some.It is real hard to listen to after a while.When I look at him when he is doing it he goes huuh(like what).That is where it becomes OCD cause it goes on and onIn public he really does it alot.Alot of his things he does are copy cat,only to the extreme. Dennis mom

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Dennis' mom

MarissaMom · Posted: September 10 2010, 6:11 PM Post subject:

I would love a 16 years and up forum to dicuss issues with other parents and connect. I am new to this board. My daughter is 19 years old and while I like this board I do read way more than I post as it seems most of the regular poster already "know" each other and have much younger children. I do post on the NADS board and have gotten to know Nicole and Alex but I too would like to try to broaden the horizen with more parents of older teens/ adults. I think it is a great idea- I would love to have a place to discuss dating, relationships, independent living, teaching money management and employment issues.

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Mary-Mom to Marissa 19 years old and Greg 14 years old and married 20 years to Mike

Dennis' mom · Posted: September 10 2010, 7:41 PM Post subject:

Hi Marissa' s mom,I also joined the other board and I agree that most of the posting is from moms and dads with young kids,although I like to see their posts I really can't relate to them.So I hope we can all share some stories.We moved to SC 5 yrs ago from way upstate NY.When our last 2 kids, Dennis DS and Denise(they are twins) graduated we moved south.Since then alot has changed with our immedient family and that has made Dennis very sad.He knows where they are,but won't give it up for them to move back.Atleast 1 time a week he blows up the air mattress and insists someone(his sister)it's so sad that time can't stand still for someone who doesn't know why the ones theylove so much and had such a bond with would want to go away.Anyway thats a little about us.

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Dennis' mom

MarissaMom · Posted: September 10 2010, 7:51 PM Post subject:

Hi Dennis's Mom- I did read your post on the NADS board and really liked the advice that Viginia -Mom to E gave you. She always has good input. It is good to get to know you!

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Mary-Mom to Marissa 19 years old and Greg 14 years old and married 20 years to Mike